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HI upsetmom. There is really no change with her no improvement anyway. She is slowly getting worse again. I'm hoping the Flagyl will help this time. Fingers crossed. I know what you're saying re the specialist we have the same issue here with general peads once your assigned a specialist under...

Hi upsetmom. Yes I wouldn't last long with that Dr I don't do well with waiting. Like you said what's the point half the time. This can be an extremely frustrating journey & sometimes dealing with the medical system only causes greater frustration. Can you change back to Dr Lemberg? I find him...

Hi Mehita yes she's had the tests & definitely not celiac. Hi upsetmom do you mind if I ask which specialist you see? I will ask about the osmolax as she has had that before & drinks it fine. I will also ask about the NG tube too. I am wondering wether to tell the specialist that we don't want...

Thank you for your support this is such a difficult time. Catherine - Yes we are seeing a GI at Randwick Childrens Hospital & the pain management team at Westmead. Brian'sMom - This will be the third time they have tried Flagyl with her she always gets worse while she is on it & shows no...

Catherine - her symptoms are constant nausea & severe cramps for the past 4 years at least & some bleeding & mucous more recently. Crohnskidmom - I have heard of the white cell scan but our specialist thinks it's a pointless test but like you I have a friend who's daughter was also diagnosed...

Hi Catherine, So how did they end up finding it & diagnosing her? Was it just through the ultrasound?

After a second lot of scopes and finding a small amount of inflammation again that is not chronic the specialist is thinking our 7 year old daughter may have crohns higher up in the small intestine that can't be seen with scopes. He wants her to try Flagyl again (3rd course) and then if still no...

Hi Catherine, Yes D was 80 B12 was 565 Red Cell Folate 1315 Celiac 3 of them were <1 & one was 2 Iron - Ferritin was 43 Which from what I can gather all seem pretty normal??

Wow I'm starting to feel like I've been kept in the dark. I just checked her last stool sample results Catherine & I can't see anything about faecal calprotectin I am gathering if it's not covered by medicare they wont request it unless I ask which I will do depending on what the scopes show...

Thanks my little penguin, I'm not aware of any ulcers but I'll read up on it thank you I've never heard of it. I will ask about the pill cam. Do you mean a Rheumatologist?

Hi Keepyourchinup, I am so sorry for what you are going through. You're right chronic pain does suck. As a mum watching my child go through it I feel so helpless. I take my hat off to you for what you are going through & that you still manage to be a mum & do all that goes along with that whilst...

Hi Catherine, Thanks for the welcome. She has had many bloods done I'm not sure I could tell you exactly what they were but her inflammatory markers & all her levels I am told are normal. Do you have a suggestion to request something specific? We have kept a food diary in the past but can never...

Yes we have used for our 7 year old daughter who we previously had to hold down for any sort of injection. The last blood test we used the cream & after a gruelling half hr in pathology trying to convince her she wouldn't feel it but not completely convinced myself she finally allowed the nurse...

Hi. I have a now 7 year old daughter who has been suffering with ongoing stomach complaints since around the age of 2.5. My instincts are telling me it's Crohn's but most of her tests are not. She had endoscope & colonoscopy October last year that showed inflammation in her small & large...