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Crohn's Disease Forum

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  1. C

    Remicade- high dose

    just moved to 10 mg every 6 weeks.
  2. C

    Remicade- high dose

    My son has been on Remicade for almost two year, since his diagnosis. He was initially put on Remicade because he also had a perianal fistula. He also is on Methotrexate pills once a week. He also has been on Cipro a fe times because of the bad fistula. They increased his dose once. They...
  3. C

    Child with stomach pain, labs good

    Sorry I should add more, stomach pain alone I agree he goes to school, as hard as it is we try to prepare him for life. It was stomach pain and some D with horrible sick smell. He typically doesnt get D with Crohns. A few of his friends where also out last week with stomach bug with throwing...
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    Child with stomach pain, labs good

    I am guilty as charged once he has a stomach pain, I jump to it is the beginning of a flare. His stomach pain has improved and all ready to go back to school yesterday and now he has dizziness. We have taken him to ENT and neurologist and they found nothing. This happened before after being...
  5. C

    What to do about Miralax

    My son takes it everyday with splash. Find a drink that she wants and that drink is only for the mirilax. my son has taken it with other drinks and hated it. I also do not give with a full glass, a small glass and then after he drinks it he will have water.
  6. C

    Child with stomach pain, labs good

    He was diagnosed almost 2 years ago with a colonoscopy and endoscopy. He also has a fistula. he is scheduled for a pelvic and small intestine MRI in two weeks.
  7. C

    Child with stomach pain, labs good

    My son has had sever stomach pain all week. He had his infusion this week and his labs all look good and no constipation or Diarrhea. Stomach pain is on left side, when he has pain it is always on left side, which makes sense when he has constipation. The pain hurts worse when he sits up...
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    Treatment for a fistula

    My son is on Remicade and methotrexate. He also has a perianal fistual as well and they moved his infusions to every 6 weeks. They also added Cipro for 2 months to help with the fistula. It has helped tremendously. He has seen a colorectal surgeon as well who is the one to put him on Cipro...
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    First Remcade infusion tomorrow😕

    My son is 14 and was diagnosed right before his 13th Birthday. He also has perianal fistula and because of that he was put right on Remicade. He has had some complications with the Fistula and they added Cipro in addition to Remicade and Methotrexade which has helped. He was only on the Cipro...
  10. C

    Overwhelmed - newly diagnosed 14 year old - Crohn's

    I am sorry, i am also a mother to a 14 year old who was diagnosed with Crohn's for a little over a year. He was put on Remicade right away, due to the severity and the fistula also his age (not yet hitting pubertly). It helped right away and he gained the weight he lost and grew 4 inches...
  11. C

    To school or not?

    Thank you all for your comments. It is hard to know. You want to push because they will have this and thy have to try to push through. My son also doesn't always sleep well either. The 504 is great but I find you still need to push to get work. I actually meet with the VP and guidance counselor...
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    To school or not?

    Just looking to see how other parents handle kids in school. When do you push, make them go to school when they don't feel well and when to let them stay home? This is a struggle I have. Curious to see how other parents handle this.
  13. C

    Advice for child with Crohn's

    My son is back to school today. No more D, but he did tell me this morning his BM is less than normal(but he also hasn't been eating as much). His next infusion is a week from tomorrow (Oct 6). He will also see his doctor the same day. His left side stomach has been bothering him more as...
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    Advice for child with Crohn's

    Thank you, yes he has a 504 plan as well and I have a meeting tomorrow.
  15. C

    Advice for child with Crohn's

    My son is 14 and diagnosed over a year ago. He is currently on Remicade and methotrexate and is going every 7 weeks. He has not had the symptom of Diarrhea. But gets constipated. The past two days he has had diarrhea a few times a day, first thing in the morning and then later I. Day. In the...
  16. C

    Need Help with 5 year old who's Afraid to Potty - Blood with BM

    Sounds like it may be encopresis. My child had that around that age. That is holding of BM's, which then leads to constipation. Try daily mirilax and also the child needs to sit on potty three times a day. Doesn't have to sit for a long time but a few minutes each time. Drink plenty of water...
  17. C

    Remicade and lab test AnserIFX

    My son has been on Remicade, for less than a year. They recently increase the dose as he was not lasing the 8 weeks. He now is going every 6 weeks with the higher dose. They started him at the lowest dose initially and did show improvement and even gained 10 lbs. He now has severe stomach...
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