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  1. Pug Gamer

    Exercise

    I have the same, although also have CFS and fibro. So unfortunately am hit 3x when I exercise. It can be very frustrating as GPs love to point out I'm overweight. But I'd say do what you can within your bodies limits. And possibly start super slow and build upto what people can normally do. If...
  2. Pug Gamer

    Many small or few large meals during the day?

    I eat 2 meals a day, no snacking and only drink water. If I have a flare I either eat one meal, or I snack instead of have full meals
  3. Pug Gamer

    Help needed!

    Your not alone in this. My crohns is in exactly the same place, terminal ileum. And also a large stricture and i had regular obstructions. I also have ibs too which I found hard to control both. I was left after constant tests, for me the only tests that showed the area fully was a barium mri. I...
  4. Pug Gamer

    Can you eat any food once you get in remission?

    I am in remission and unfortunately can't eat alot of foods. I have crohns in my terminal ileum, which has caused ibs and lactose intolerance. So for me it's anything with fibre, fruit, veg, oats, wholegrain, caffeine etc. I can take potatoes, sweet potato (smaller amounts) and onions with...
  5. Pug Gamer

    Azaithprine long term

    I have been on azathioprine for about 7 years now, and only got to remission whilst on it. But he is now asking questions about taking me off of it as its been so long. I don't mind lowering at most. But it scares me I will be taken off, go active and it won't work for me if I go back on it. So...
  6. Pug Gamer

    Still feel sick with Azathioprine after nearly 4 weeks! HELP!

    I had nausea from azathioprine for a good year or two. It wasn't until I was in remission and drastically adapted my diet (no fibre, lactose) that I then had the nausea stop completely. So for me, I don't know if it was azathioprine making it worse, or causing it or being in active crohns. it's...
  7. Pug Gamer

    Covid and immunosuppression meds

    Hello everyone, 👋 I hope everyone has been safe and in good health. I was just wondering how many people have had covid with immunosuppression medications? (Azathioprine etc) What was your experience? And do you shield/be careful still? I've been pretty much shielding the whole time except for...
  8. Pug Gamer

    I´m getting off medication.

    I am in the same situation. I'm on the highest dose of azathioprine for my size and am in remission. So mines said about coming off of all medication! I said I'm really worried about that, despite the covid situation (still mostly shielding). I'm 36 and have been on it since I was 30 and have...
  9. Pug Gamer

    Long-term hoarseness and throat problems

    I never knew this could happen to us. But it has made me wonder if it is connected to a random patch of lost voice I had earlier this summer. So I have acid reflux, crohns and a plethora of other stuff. One day I was singing away to a song and I noticed I couldn't hit notes, I'm no singer but...
  10. Pug Gamer

    Azathioprine and alcohol

    Im on 150mg daily of azathioprine and due to restrictions on my diet, I have very very rarely had any alcohol. And none for years now as it can cause flares for me. I did however notice that when I had a drink (at weddings) it would get me feeling drunk very very quickly. Now I never was a...
  11. Pug Gamer

    Covid vaccine booster

    I am on azathioprine (imuran) and have had 4 covid shots so far. So far I've noticed a difference in makes giving me quite bad pain in my arm after 3 or 4 hours, which lasts a good 4 or 5 days. Pfizer I had the worst pain for that. Other than that the first one I felt knackered, slept like a log...
  12. Pug Gamer

    Testing : How often ?

    For me I have blood tests for azathioprine every 3 months, that doesn't test for inflammation or anything though, just kidney and liver function. Stool sample normally yearly or more, I have it done at home with a app now which sends the results straight to him. Colonoscopy is about 4 years...
  13. Pug Gamer

    Skin cancer from Azathioprine

    I apologise for such a late reply. I ended up having the biopsy done. It ended up being a larger tumour than they thought. I now have a pretty decent sized scar, a tumour gone and a very relieved me! It turned out to be a mole that mimics the worst skin cancers, but infact is perfectly safe and...
  14. Pug Gamer

    Food?

    I have taken so many years figuring out my intolerance and dodgy foods. Basically anything healthy will make me flare unfortunately. Fruit and veg is my biggest no no apart from potatoes and onions and small amounts of very well washed lettace and tomato sauces. I am lactose intolerant but I...
  15. Pug Gamer

    Losing appetite but feeling healthy, flare incoming?

    I also get this. For me I have ibs and ibd and although it used to sometimes be around ibd flare ups. I've since noticed it can be totally random and for no reason as I'm in remission. I do wonder if for me it is slightly psychological. Because food has caused obstructions and so much pain...
  16. Pug Gamer

    IBS&IBD

    I have both ibs and crohns, personally I think my ibs started first. But it's so hard to know. Now I have lactose intolerance as well as 2 vitamin deficiencies and acid reflux. All from ibd. My crohns was not diagnosed for 7 years, until it got to stricture stage unfortunately. It's super common...
  17. Pug Gamer

    Skin cancer from Azathioprine

    Thank you both for your replies. It really does help me in more ways than I can explain in words. For one this has solidified in my mind that if I do get the chance to get off of aza, I will! I did read somewhere that it's very normal for cancers (mainly skin cancers) on aza. But staying on it...
  18. Pug Gamer

    Skin cancer from Azathioprine

    Hey everyone, so I was originally on entocort for my crohns. But it didn't stop the obstructions and so was put on 150mg daily of azathioprine for around 3 years now. I have been in remission ever since, I also have alot of other illnesses (don't we all!) And have found it hard knowing if some...
  19. Pug Gamer

    I had pizza after 18months!

    So like alot of us on here, i have lactose intolerance due to my crohns. I was hanging onto anything i could get away with, and mozzarella was the last thing that i had to stop. And its been so depressing, im such a fan of all things cheesy. And having the free from versions i just didnt like...
  20. Pug Gamer

    Wall of silence

    Hello everyone, i am on azathioprine and of course have my regular blood tests. My GI has said every 2-3 months now. I had one in january and one 2 weeks ago. The forms are either from my GP or the hospital ones from my GI and i fill in the section "copy to" with GP and thats been fine for 6...
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