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Crohn's Disease Forum

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  1. C

    Tingling

    My 16 year old is on Remicade and methotrexate. One day after his infusion he developed tingling to both legs. Initially Vit B12 levels were greater than 2000 but now normal. Rt leg is weak with decreased sensation. Tingling is worse with exercise. MRI of brain and spine are negative. Neuro...
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    Home infusion

    Has anyone started having Remicade home infusions? If so, how is that working out?
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    Parents of kids with IBD

    So far those are the GI's choices: split the mtx over two days OR switch to 6mp. Thanks for tagging the others.
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    Parents of kids with IBD

    My son is a teenage boy currently on Remicade and methotrexate. Has been on mtx for about 3 months now and is having itching of the face and feels like he can't breath about an hour after the dose. Benadryl does relieve the symptoms. Thinking of switching to 6MP but concerned about the...
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    Remicade & methotrexate

    I understand. We haven't had to deal with EOE.
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    Remicade & methotrexate

    Occasionally but it does seem to help.
  7. C

    Remicade & methotrexate

    Yes that's what I meant. My son has a fistula there that causes bleeding- no real pain. But the new area of inflammation closer to front does cause him alot of pain or did before 2 courses of Cipro and Flagyl.Thank you for your input it really helps!
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    Remicade & methotrexate

    Thank you
  9. C

    Remicade & methotrexate

    Yes that's what I meant. My son has a fistula there that causes bleeding- no real pain. But the new area of inflammation closer to front does cause him alot of pain or did before 2 courses of Cipro and Flagyl.Thank you for your input it really helps!
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    Remicade & methotrexate

    Thank you!
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    Remicade & methotrexate

    Is the inflammation perianal?
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    Remicade & methotrexate

    Thank you for that information! I am definitely in the stay up at night stage! Thanks again!
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    Remicade & methotrexate

    Would love to hear how your children tolerated Remicade and now adding methotrexate. I am concerned about the side effects and possible risks. Using it to treat perianal Crohn's with current fistula and inflammation not yet controlled.
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    Carbonated beverages

    These are all great responses to help me understand the disease process better. Thank y'all!
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    Carbonated beverages

    Sodas (soft drinks) make the perianal (fistula) drain more. Trying to determine if it is the carbonation, sugar or caffiene. Has anyone else had this intolerance?
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    Perianal fistula

    Thank you all for the comments. Trying Cipro and Flagyl now in hopes of preventing drainage of the areas or Seton placement.
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    Perianal fistula

    Has anyone had a fistula close while on Remicade or another Biologic and if so did it abscess during the healing/closing process?
  18. C

    Remicade fatigue

    Thank you all for the input. Hgb was good at 16. Has a Vit D deficiency and is on a supplement. Hasn't had a recent B12 or iron test.
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    Remicade fatigue

    They haven't been pre-medicating with Benadryl or Tylenol and the fatigue has been ongoing for several days post infusion. Hopefully it will improve after dose #3
  20. C

    Remicade fatigue

    We are post dose #2 of Remicade just off of Humira. It seems his fatigue has returned. Just curious to hear how other kids have managed the fatigue and if it tends to fade with further treatment.
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