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Crohn's Disease Forum

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  1. GI Jane

    Thinking about getting a port, share your experiences!

    Would love to know your long term experience on this.
  2. GI Jane

    Remicade and Portacath

    I would love anyone’s feedback on this thread about the port as they have yelled at me for years to get one and had always thought just get better at your job. Once that anger stopped and did research realized ya besides my small deep veins I have scar tissue. I feel more bad for the infusion...
  3. GI Jane

    Crohn's and Reflux connected?

    Thanks guess I need to go through mes cabinet again crazy.
  4. GI Jane

    What song is bouncing around your head?

    Yep such a good song…I can relate.
  5. GI Jane

    Crohn's and Reflux connected?

    Should own stock in Tums and Ranitidine. Diet hasn’t helped much but some.
  6. GI Jane

    Sores in the corner of my mouth

    Ya so tired of cracks on the corners of my mouth. Was told problem with Crohn’s. :-(
  7. GI Jane

    Prayer and Spiritual Support

    Amen
  8. GI Jane

    Prayer and Spiritual Support

    Thanks and to you also it was a hard hit not being able to go to Israel this year. We did reschedule for next year.
  9. GI Jane

    NEW TO CROHNS FORUM

    I seem to finally have my Vedolizumab working took 8 months and liquid diets and prayer :-). Yep I can handle little amounts of sweets. Like a few chocolate chips in my oatmeal with morning. Take care.
  10. GI Jane

    Is Entyvio Effective At Treating Crohn's Flares?

    No had to look this one up but I sure have these symptoms. Meet with doc on Wed so will ask. Got blood work and we shall see from there thanks.
  11. GI Jane

    Is Entyvio Effective At Treating Crohn's Flares?

    I am on my 8th month of Vedolizumab with inflammatory markers down but no end in site on diarrhea. Remicade became allergic too and this seems to be my last hope until something new comes out....I miss Asacol....was so upsetting when taken off market....it was my wonder drug....tried the...
  12. GI Jane

    Milk Thistle Extract Experiences

    I used to drink a tea form of Milk Thistle which slightly helped......you've made me want to look into again. So many teas give to really bad heartburn.
  13. GI Jane

    close call

    The MRE with barium found my fistula once when nothing else did. Had to lick a saltine cracker to not throw up that chalky stuff. It's hard when you are scared to eat but so hungry. My go to is Lipton chicken noodle soup in a box. Tiny thin noodles and only chicken broth you can sip it the...
  14. GI Jane

    NEW TO CROHNS FORUM

    We need a chocolatier in Seaside Oregon move here.....I miss my good sea foam :-)......yes it kills me but it's worth it lol
  15. GI Jane

    A new adventure for The Braille Chicken Whisperer

    Was diagnosed 16 years ago about and went through a lot of medications and surgery. Tried elimination diet, Jordan Rubin diet, European diet, vegetarian diet....all seem to help some.... and for awhile.... but the big bad wolf is always lurking in the intestines. I had a couple year remission...
  16. GI Jane

    What song is bouncing around your head?

    That flashes me back.
  17. GI Jane

    What song is bouncing around your head?

    I remember the first time I saw this video I thought no way this guy is too pretty boy to have such a powerful voice lol.
  18. GI Jane

    What song is bouncing around your head?

    Ok this one got me off the couch :-)
  19. GI Jane

    What song is bouncing around your head?

    Ok great kids movie....:-)
  20. GI Jane

    What song is bouncing around your head?

    Ok last one from my pity party.....starting steroids so angry ones should be next lol.
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