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I've decided to go jump into the ocean today. This is it for me. But I wanted to tell my story in some anonymous way in case there is some last ditch effort I can be saved. I don't think there is though. I've had refractory colitis for 6 years. I've done everything under the sun to get better...

So I likely have Crohn's and not UC, or maybe I have both. They are trying to figure it out right now. I have some questions about the differences between CD and UC. I have a friend who has just CD and she can't have high fat meals whatsoever. They go right through her. Same with raw...

I might try antibiotics again. I have tinidazole and septra here that I might toss at it. Oh, and clarithromycin. What's EEN?

I was given a UC diagnosis in 2015. This year I developed a perianal abscess after trying FMT which I had surgery for, and it has now become a fistula. They have tentatively revised my diagnosis to Crohn's pending an MRI. My disease is almost entirely in the last 12 inches of my colon. I bleed...

I was formerly diagnosed with UC and I tried fecal transplant (FMT) back in March. The syringe they used to insert the enema had a sharp edge and nicked the inside of my bowel. 3-4 weeks later I had an abscess which I am SURE is connected to that sharp edge, but I can't prove it. After the...

You're welcome OleJ. My plan is to see if my bowels achieve remission going forward. As I mentioned before, my UC is highly cyclical and refractory. I get a flare once per year like clockwork, but in between my bowels are very normal, so is my diet. So something is very amiss. What I'm going to...

Now that I've stopped the antibiotics and have been doing intensive probiotics, my bowels have become a lot more regular. Solid stools, no blood, although I'm still going 4-5 times daily and there is pain from the recent rawness. I figure that will get better as time goes on. I was even able to...

I came down an enterovirus this week that landed me in the hospital. They ran a CT scan as a precaution and it showed that I have extensive small bowel inflammation. My stool tests are negative for c. diff and other obvious pathogens. Based on my recent history, it's likely that the antibiotics...

There are 3 major variables here, actually 4. 1) Diet has been off lately, eating too much sugar (Christmas time) 2) Stopped prednisone just over a week ago. 3) Had an iron infusion 4 days ago. 4) My Entyvio dose is late by one week. The anxiety/depression, I feel, is definitely abx related. I...

An update. I'm past the 6 week mark since starting AMAT. I have been having difficulties with the protocol. I've had an eye twitch for the past 3 weeks that won't go away no matter what I do, including magnesium. I've also been severely depressed and anxious, with bouts of fear and paranoia...

I also got my blood done Otakaro. The conclusion that was drawn was that I was in active flare status or sub-optimal control. The presentation was identical to that of Crohn's patients, except I have received a dx of UC. Your numbers also match mine then, and you have CD. So this is all very...

That's a handy bar graph. I don't have something so visually laid out, though I guess when I get my second round of blood work cultured I will be able to draw comparisons. You have way more large forms than I did in my test, but I have UC and you have CD. The highest I had was 6%. If MAP is...

The numbers are always higher during a flare because that's when they're active and reproducing. They create biofilms and peptidoglycans which induce inflammatory responses in the body. During periods when you're healthy and strong they will be dormant and in smaller numbers.

I'm 1 month in and all bleeding has stopped. Stools became formed so quickly that they are actually causing bleeding, but the bleeding is not related to UC. CRP is in normal range now. I can finally start to get off prednisone. Because I stopped taking clofazimine, I am looking into a 3rd drug...

I'd just like some input from the CD community here because after years of dealing with this, I am still confused by my diagnosis. In 2013 I suddenly stopped being able to eat gluten, wheat, dairy and a host of other things. I'm guessing this was the beginning of leaky gut. It happened after a...

Just a little update. I'm one week in and having a hard time. My bowels are extremely irritated by the antibiotics. I had to cut out clofazimine for a little while and just stick to clarithro and rifa. Even so, I am bleeding a lot and my CRP went from less than 1 to 35. I'm getting an iron IV...

My mycobacterial infection was diagnosed by Otakaro Lab in New Zealand. Right now it's the most accurate method available. The Crohn's Vaccine development program is also creating an accompanying rapid MAP test that will be available in the future, but for now Otakaro is the best we've got...

I suggest everyone ignore Crohn2357. He's just here to troll with scary research and not really have a genuine discussion about the clinical experiences with AMAT. I wish the mods would do something about it. What matters more is what IBD patients on AMAT are saying. Random research about the...

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P.S. Sorry if I got a little short about the "danger" studies. I have been researching the ins and out of this topic for 6 months or so. I have a scientific background. Despite all this research, I still feel unprepared to start taking the medication. If more doctors were doing this, there would...