I was given a UC diagnosis in 2015. This year I developed a perianal abscess after trying FMT which I had surgery for, and it has now become a fistula. They have tentatively revised my diagnosis to Crohn's pending an MRI. My disease is almost entirely in the last 12 inches of my colon. I bleed and get ulcers just like in UC, except I have transmural symptoms. I also have patches of more minor inflammation throughout my colon, like in the transverse and in the cecum. They've always been there but the doctors just wrote it off as a anomaly. My original diagnosis was patchy Crohn's-colitis, but after the bowel biopsies were examined it was revised to UC. Now in 2018 it is being revised again to CD.
I'm very devastated by the news. My disease is severe and I was considering colectomy, but now I am not eligible for the j-pouch because I have CD. The only option they're offering me is permanent ileostomy and I just don't want it. I'm in my early 30's and I can't negotiate a bag. I feel that I have no choice but to figure out how to heal myself but I know next to nothing about living with CD because until now I have been treating this as UC. All the things that I tried to do to help my UC may not even work on CD... so I just don't know.
To be 100% honest I don't want to be alive anymore. My doctor knows about my suicidal mental health state and has prescribed anti-depressants. I have access to counsellors, but there's nothing to mentally negotiate. I attend an IBD support group. I have failed all IBD meds including biologics. Entyvio worked for about 14 months then failed. Everything in my life sucks because I have IBD. The way out is for the IBD to get better but it seems like it never will.
The best period of near-remission I had was following a short course of antibiotics I took in 2016. There were 3 different kinds. I was fine for almost a year -- a year of not having to worry too much.
I've been home bound for almost 4 months now and there's no sign of it letting up. Now that I have a fistula, it may call for surgery, which means more recup time at home. The abscess that I had drained in April triggered a full on flare and I almost bled to death. What recovery I've achieved, I feel could be undone by more surgery.
I guess my question is... what is different about CD vs. UC in terms of diet? I notice that I don't absorb fat well anymore. My GI doctor has never done a top-down endoscope, so I don't really know the state of my SI.
I'm very devastated by the news. My disease is severe and I was considering colectomy, but now I am not eligible for the j-pouch because I have CD. The only option they're offering me is permanent ileostomy and I just don't want it. I'm in my early 30's and I can't negotiate a bag. I feel that I have no choice but to figure out how to heal myself but I know next to nothing about living with CD because until now I have been treating this as UC. All the things that I tried to do to help my UC may not even work on CD... so I just don't know.
To be 100% honest I don't want to be alive anymore. My doctor knows about my suicidal mental health state and has prescribed anti-depressants. I have access to counsellors, but there's nothing to mentally negotiate. I attend an IBD support group. I have failed all IBD meds including biologics. Entyvio worked for about 14 months then failed. Everything in my life sucks because I have IBD. The way out is for the IBD to get better but it seems like it never will.
The best period of near-remission I had was following a short course of antibiotics I took in 2016. There were 3 different kinds. I was fine for almost a year -- a year of not having to worry too much.
I've been home bound for almost 4 months now and there's no sign of it letting up. Now that I have a fistula, it may call for surgery, which means more recup time at home. The abscess that I had drained in April triggered a full on flare and I almost bled to death. What recovery I've achieved, I feel could be undone by more surgery.
I guess my question is... what is different about CD vs. UC in terms of diet? I notice that I don't absorb fat well anymore. My GI doctor has never done a top-down endoscope, so I don't really know the state of my SI.
