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Crohn's Disease Forum

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  1. L

    UC, Crohn's and Cleveland Clinic for diagnosis

    Thank you. Take care and we'll talk again, I'm sure. Linda
  2. L

    UC, Crohn's and Cleveland Clinic for diagnosis

    Oh, TheEnd2, I am sorry to hear that you now are dealing with another condition, and that you're feeling so down. :stinks: I can understand. Trust me! I thought, after my Addison's diagnosis, that was it...I was on my way to a better life since that's what was wrong with me all along. Not...
  3. L

    UC, Crohn's and Cleveland Clinic for diagnosis

    Thanks, I do too. I just don't get how doctors can see problems in the GI tract, for years, yet tell me the pain is anxiety, or in my head. I can understand "inconclusive,", but it's still frustrating. What is it you have Theend2? Crohn's? I think my GI doc here was leaning towards Crohn's...
  4. L

    UC, Crohn's and Cleveland Clinic for diagnosis

    This is all so frustrating. Not only is it hard to even diagnose these diseases, but then they have a hard time deciding which one you have if you do have one of them. UGH! I'm not looking forward to any of this, but it's better than not knowing anything at all, I guess, or being told the...
  5. L

    UC, Crohn's and Cleveland Clinic for diagnosis

    I was at University of Michigan, and looks like they disregarded this test, too, and they're the ones who ran it. Oddly enough, they never did a colonoscopy, just an ERCP. I do remember one of the GI docs saying that one of my xrays showed mild thickening somewhere in my bowel, but I can't...
  6. L

    UC, Crohn's and Cleveland Clinic for diagnosis

    For TheEnd2 Hey, again, I just found some reports from a hospitalization I had in fall of 2008. I was having severe GI issues then and had an ERCP. Anyway, my paperwork reads: "IBD-7: Pattern Consistent with IBD, Pattern Consistent with Crohn's Disease." Is this possibly that Prometheus...
  7. L

    UC, Crohn's and Cleveland Clinic for diagnosis

    Hey, TheEnd2, you never know! :) I once had to have blood drawn in the dark, for porpheria, I think. That was an experience! Hey, Mitch, sorry you're not having a very satisfying experience at CC so far. Why are they wanting an MRI Enterography, may I ask? More to the point, I guess, what...
  8. L

    UC, Crohn's and Cleveland Clinic for diagnosis

    Hi, Shadycat, Thank you for the response. I'm so glad your father and your whole family had such a good experience at the CC and that they saved your father's life. My husband is currently being seen up there in rheumatology and they've been very helpful. Unfortunately, my experiences there...
  9. L

    UC, Crohn's and Cleveland Clinic for diagnosis

    Thank you for the suggestion. Could I ask a possibly stupid question? Was the blood that was sent for this test that you had, the colon blood that you were having, or was it done via arm prick? Thanks, again, Linda
  10. L

    UC, Crohn's and Cleveland Clinic for diagnosis

    Hi, everyone, I'm new here and lost. My local GI has dismissed me as a patient. I've been accepted at Cleveland Clinic. First question, if I may: Have any of you been to Cleveland Clinic for your IBD assessment? If so, did they diagnose you? Did you feel good about their care? Second...
  11. L

    Bad day, no help from docs

    Thank you, again, everyone, for your support. I did call my pcp, who is seeing me Thursday. I hope he can help somehow. I'm still waiting on the GI from Cleveland Clinic to call and offer advice. I have another of my doctors asking a GI doctor in the group of the one who dumped me if...
  12. L

    Bad day, no help from docs

    Hi, MountainQueen, Yes, the more I think about it, the madder I get, so I'm trying not to think about it as it's not doing my guts any good. The problem here is, we have only one GI group, and if you have problems with one GI in the group, the others don't really want to take you and it's a...
  13. L

    Bad day, no help from docs

    Thank you, everyone, for your suggestions and support, but I guess it doesn't matter much right now anymore, as my GI doc dumped me today. No scope tomorrow. He's upset that I wanted to be stress-dosed for the procedure since I have Addison's disease (no adrenal function) and have to be on...
  14. L

    Bad day, no help from docs

    Hi, JennJenn and thank you for the response. Yes, my doctor knows I have the flu, but he said there's nothing he can do about it and to go to the ER should I start to experience problems. He knows I have Addison's, as well, and doesn't think much of it, either. I feel like giving up...
  15. L

    Bad day, no help from docs

    Hello, everyone, I'm having a horrible day. I wonder if I can ask your opinions. I'm so frustrated right now, I could just cry. After feeling constipated for a few days, with a bloating abdomen, I had a rush call to the bathroom, with lots of stool, then bleeding (ugh, I don't usually bleed...
  16. L

    Been trying to post with questions.

    Thank you, Merrywidow, for the welcome. I'd like to list my symptoms, if I may, and see if they are what you all experience. This will help me sort things out, I think. I hope so, at least! :confused2: My symptoms when I'm feeling poorly with this: --PAIN! Abdominal that sometimes is...
  17. L

    Been trying to post with questions.

    Hi, everyone, I've been trying to post with questions since I joined over the weekend, and my posts aren't going up. I'm wondering if I'm still waiting to be approved, yet my introduction went through. I had asked about symptoms relating to Crohn's. I have an entire list of them. I wondered...
  18. L

    New here, testing for crohns

    Thank you all again for the warm welcomes. I appreciate them and appreciate all of you being here. Joan, your lobotomy story made me think of a doctor I had a few years ago who said, "I think we should just cut you open and see what's going on. It would be easier than all of these tests, and...
  19. L

    New here, testing for crohns

    Thank you, Kenny and Joan, for the welcomes. I'm pretty sure, given all that my GI doc has said, that I'll be getting my Crohn's diagnosis soon. And, in all honesty, while I certainly am not happy about having Crohn's, I am sort of excited that I may be getting a diagnosis, FINALLY, for what...
  20. L

    New here, testing for crohns

    Hello, everyone. I'm glad to have found all of you. I've been reading a lot of your posts, and there's a great deal of activity here. I'm hoping you experts can help me. I've been having GI issues for years: pain, alternating diarrhea / constipation, weight loss. Not much bleeding, though...
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