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Crohn's Disease Forum

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  1. Grumbletum

    Scottish Crohn’s misery!

    Hello, Ally, from another Scottish Crohnie. I was diagnosed at the age of 51 in 2010. Bit of a bolt from the blue!!
  2. Grumbletum

    PVT (Portal Vein Thrombosis)

    Hey Your post above made me laugh - now after the fact. I think I found the same article as you did when I came out of the hospital. Really shocked and depressed me. How did your colonoscopy go? Hope the news is good. I'm well on the mend. Had a CT scan last month and as the clot is no longer...
  3. Grumbletum

    How can you manage IBD before proper diagnosis?

    Yes, I'm with nitty. I'd been ill for about 6 months when I first found this forum. I had a fistula from my bowel to my bladder and constant UTIs, so Crohn's didn't figure in the equation for quite a while. When it was first mentioned as a possibillity I Googled and this was the first site that...
  4. Grumbletum

    PVT (Portal Vein Thrombosis)

    Hi highlandsrock I was wondering how you were getting on. I'm really sorry that you are flaring again. Have you had the colonoscopy yet? Things have moved on a bit for me too. My last post I was still in the hospital and a bit institutionalised and spaced out on painkillers etc. Of course, when...
  5. Grumbletum

    Needing some advice - feeling stressed :(

    Oh dear, I'm sorry you are having all this trouble. It sounds awful. I wonder if you could ask your regular doctor to refer you to another specialist? To me it seems you are not getting enough information or support from the one you have. I would be wanting to know if there is some underlying...
  6. Grumbletum

    Most of what I eat

    Oh, not good Ronroush. Make sure you stay hydrated. And it might be worth giving your stomach a rest for a few days? Get some Ensure, Fortisips or the like for nutrition.
  7. Grumbletum

    Rash on soles of feet on Remicade

    I got psoriasis on my feet and legs while on Infliximab (Remicade) but if his rash is not itching, it's probably not that.
  8. Grumbletum

    Breakfast you all generally eat?

    I usually have gluten free muesli with natural live yoghurt and a little honey. Sometimes add blueberries, strawberries and banana.
  9. Grumbletum

    Experience w/ juicing

    Just remembered, the one I had in the UD was a Jack Lalanne - centrifugal juicer. I think he does quite a range though and they can be expensive. I got mine cheap secondhand from a friend who'd only used it once.
  10. Grumbletum

    Experience w/ juicing

    Hi. I'm staying with a friend at the moment so can't tell you what juicer I have. Back in the UK I had a really good one, but here in Yangon I've just got a little one that I brought back from Bangkok. I regularly juice apples, carrots, cucumber which I can get easily and beetroot, celery etc...
  11. Grumbletum

    Whining/Self-Pity/Usually More Mentally Strong than Today...

    Oh dear, no wonder you were having all those issues. Hopefully the surgery will have sorted them out and the iron meds might give you a bit more energy. Keep us posted on your progress x
  12. Grumbletum

    A newbie's background

    Hi Miss Kat And a big warm welcome to the forum. It sounds like you've had a lot to content with in your young life, but your positive and upbeat attitude is refreshing.Yea, a Crohn's diagnosis is a lot to get your head around, especially when you have other issues to contend with. You'll find...
  13. Grumbletum

    Concentration and memory issues

    I'm sure I read somewhere that when you are flaring, your body diverts all it's attention to fighting the disease and its symptoms, so I guess that will include the brain too. It's great to hear your brain fog has gone. Maybe there is hope for me yet!
  14. Grumbletum

    Pales diet

    Hello there and a big warm welcome to the forum. Thanks for sharing your story. It's great to hear that the Paleo diet has done the trick for you. Do you take any medication at all? Wish you all the best with your life and your job. I have nothing but admiration for you firefighters and the work...
  15. Grumbletum

    Newly Diagnosed- Struggling

    Hi Susher And a big, warm welcome to the forum. I am so sorry to hear about your diagnosis. It is a lot to get your head around. I remember being relieved at first when I got my diagnosis cos at last I knew what was wrong, but then it kind of sinks in what you're up against. On the plus side, it...
  16. Grumbletum

    Signs of my disease return after surgery

    Hi Big Boss. Really sorry to hear about your troubles. I'm in a flare again after 3.5 years remission after surgery and being treated for a related PVT. It can be hard to see the light at the end of the tunnel some days. It sounds like you have a sympathetic GI which is good. Have you discussed...
  17. Grumbletum

    Bile malabsotion

    Hi John. I had a resection in 2012 and since then I've had issues with bile malabsorption. If your ileocaecal valve has been removed, that often leads to BAM. I find I can control it somewhat by avoiding food which is very greasy, oily or fatty. I haven't tried it myself, but a lot of people say...
  18. Grumbletum

    My story need advice about CT scan

    Sudocreme is also good for sore botties!
  19. Grumbletum

    coping strategies you all use?

    Yes, yoga and meditation really help me when I'm feeling anxious or down. I used to find knitting, spinning etc really therapeutic as well, but it's it too hot to do those in Burma!
  20. Grumbletum

    Experience w/ juicing

    Hi there Are you thinking of juicing as an alternative to medication? I juice when I can when I am flaring but I also take meds. For me the juicing is a way to get all the goodness from fruit and veg into me and I find it boosts my energy levels. I have a stricture so am avoiding a lot of fibre...
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