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Crohn's Disease Forum

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  1. J

    Cyclosporine (IV and Pills)

    The doctor in NY who handled my treatment was Adam Steinlauf, he is at the Jill Roberts IBD Center at Cornell Univ Hospital in Manhattan. Good luck!
  2. J

    Probiotics - how long until you noticed a difference?

    I have noticed a difference, but I think it is from a) eating less starchy/carby foods (like one piece of bread or a few pretzels per day) and b)the yogurt, because I am lactose intolerant. I'm going to stick with it for the rest of the month, but I think eating mostly fruits/cooked...
  3. J

    Two Chili-Dogs later....

    amazing how some people can eat like that all the time and not have any gi problems. i miss pizza!
  4. J

    Probiotics - how long until you noticed a difference?

    For those of you taking probiotics, how long did you take them before you noticed a difference? A week ago I started taking Align and eating yogurt (Activia and greek yogurt) in hopes of helping with constipation. I know that most people on here take probiotics to decrease the number of times...
  5. J

    Pancolitis

    One of the tests for bacteria came back positive, so they've determined that it was a really bad case of food poisoning that made her colon very inflamed. They haven't completely ruled out colitis because they saw some ulcerations during the colonoscopy, but for now it looks like she dodged a...
  6. J

    Pancolitis

    Thanks! Me too. Colonoscopy tomorrow morning.
  7. J

    Pancolitis

    I was diagnosed with UC in 2009 and when I found out, I was worried that my younger sister should get checked out since there was an increased chance of her having some colon problems as well. She kept getting sick over the last couple months, just colds and what not and doctors kept giving her...
  8. J

    Cyclosporine

    Cyclosporine IV and Pills I have UC and after going off prednisone and taking Lialda and 6-MP my GI felt that those medications were helping, but just not enough to heal my colon. The options he gave me were cyclosporine, remicade, or go back on prednisone. Chose cyclosporine bc he thought it...
  9. J

    Hair Loss from 6mp or Purinthol or Mercaptopurine

    I noticed a bit of thinning and hair loss when I started being treated, but not handfuls - my hair was just noticably thinner, since it had always been very thick. I started using Nioxin shampoos and conditioners and it did help - now I take cyclosporine as well (which one of the side effects is...
  10. J

    Punched Feeling in My Stomach

    Could be...I'll talk to them tomorrow. I'm also going to see a nutritionist and see if she has any advice for how to get the fiber i need without eating the foods that seem to give me this feeling, since it those foods (apples, oatmeal so far) cause it some of the time.
  11. J

    Punched Feeling in My Stomach

    I think it's a little higher up, like where the esophagus passes thru (or behind?) the liver in that picture...but thanks for posting that picture! Last colonoscopy was in Nov. when I was released from the hospital, and there was some inflammation but it had gone down from the one they did...
  12. J

    Punched Feeling in My Stomach

    I was wondering if anyone else has had this feeling and either knows what it is or if they have any suggestions. My doctors believe that they have my UC under control, but now that the inflammation has died down, my bowels aren't moving as fast so I need to incorporate more fiber and normal food...
  13. J

    Cyclosporine (IV and Pills)

    Hello, In Nov. 2010 I started treatment with Cyclosporine through an IV for 10 days and am currently taking it in pill form (as Sandimmune capsules). I had a lot of trouble finding out information about other people with UC or Crohns who did this treatment and what sort of side effects they...
  14. J

    Medications working too well?

    Thanks, I guess I'm so used to running to the bathroom 8 times a day that this feels weird to me!
  15. J

    Medications working too well?

    Hello, I was wondering if anyone had any advice to offer... I have UC and was taking Lialda (4 pills/day), Sandimmune (Cyclosporine) 225 mg 2x/day, and 6-MP (50 mg/day). Everything seemed to be getting better, I wasn't running to the bathroom as much, but then a couple weeks ago I started...
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