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  1. M

    Is your child on Aza/Imuran?

    Ahhh Shelley....I see your son's ride from "H" continues! I was hoping his 'special food' was helping! I don't know much about MP6 except that will be our next step if my son's ride gets "H"ish again! I don't like it either. But some how we do what we have to do as parents! It's never easy...
  2. M

    So nervous about tomorrow!

    I was wondering how his day went!!! I'm glad it was positive for him! Way to go S!
  3. M

    So nervous about tomorrow!

    Good luck to S tomorrow. I think once the curiosity wears off. No one will pay it no mind. I hope my words ring true!!! Gooo S!!!
  4. M

    We have been admitted

    Ahhhh Shelley! Your poor little Big man!!! I'm hoping this does the trick & real quick! Big Hugs to you & all that you carry on your shoulders!!!
  5. M

    Missing school question

    No days lost this to CD. But last year Daniel lost 30 days about & was late to school as many days for his CD & related issues! He did really well in school but not as good as HE wanted to!
  6. M

    We are c-diff NEGATIVE

    Shelley I would be very wary of Imaboveitall if she brought you lunch in VS bag! LOL!!! Sascot.....we get a special specimen hat to put in with the toily bowl man to catch it all! LOL.....true! But it looks nothing like a hat hat! Maybe one with wings....airplane one not bird! LOL!!! Ok...
  7. M

    Off to the ER again

    Prayers being sent! Strength, Courage, Peace, & Comfort for ALL!
  8. M

    We are c-diff NEGATIVE

    Yeahhhhhhh! Shelley!!! I am so happy for you & your son!!!! What a load off your mind!!! Well one less thing at the moment!!!
  9. M

    Nervous... Is that blood?

    Your so right about not waiting till things get that bad. As some of those symptoms are of more severe blood loss. My DIL has UC & she HAD good results from the get go with Remi. But 2 years into it stopped working. They gave it to her every 2 weeks towards the end in a last ditch effort...
  10. M

    New football cleats...2 sizes bigger!

    It's wonderful to see our kids grow! It shows that things are working in the right direction! That's my Daniels shoe size & he is only 5' 1"!
  11. M

    Nervous... Is that blood?

    Myreinhard, I've been reading off & on here. To say you all have been through the MILL is an understatement! I know through reading that your daughter has been in the hospital for blood loss before amongst all the other problems. I am sure you are now aware of what she looks like when it's...
  12. M

    C Diff?

    That stinks Shelley! You know the hospital doesn't close. Figure out when out patient labs closes today. If it's noon time call them 15 minutes before & see if they have the results in. You don't have to wait for your Dr. It's your information! In fact call them first thing this morn & ask...
  13. M

    C Diff?

    Don't think so the drug company still needs it's pound!!!
  14. M

    C Diff?

    No.....not a one! He tolerated it pretty well. He took it with food too. It's major heavy duty, but it's the only other med that covers except Flagyl! I'm pretty sure unless they have something new! Oh I hope you have good insurance! $1,000 for about 25 pills before my insurance covered...
  15. M

    C Diff?

    Fingers, toes, (my eyes if they wouldn't stay that way) crossed!!!!! Not sure who is to call you. But it was our Dr's office that did. In fact it was after hours that he called to let us know. I know we can go to the hospital for lab results....not sure if you can get them over the phone...
  16. M

    C Diff?

    imaboveitall, No problem! Most people present as you described but some with more or less intensity. But with CD, my boys gas/poop smells foul often in our house!!!! But your right it is a little different & does have a different odor. I guess my concern is when our children are on the...
  17. M

    C Diff?

    Shelley, Even us seasoned CD parents get wound up when things start snowballing! I hope you don't mind but I giggled with you! Sense of Humor helps to get you through the Messes in Life! Although some DAYS...Ok on to the answer to your ? ! It depends on the Hospital. My son goes to...
  18. M

    C Diff?

    imaboveitall.....Yes I do agree with you that it has a di-STINK-tive smell & is usually explosive D to boot. But in my son's case & with my first hand knowledge as I have worked with many patients with it. I was FLOORED when my Son's test came back positive with it!!!! It didn't have the...
  19. M

    C Diff?

    Ahhh Shelley, It is such a roller coaster ride! Sounds like you could be hitting another twist! Take a deep breath....yes I cried when Daniel got C-Diff. I work in the health care field so I know what this stuff is! But it can be treated, all though it will take time & a lot of patience...
  20. M

    Any success only using one of the 5 ASA drugs?

    Shelley, yes that is what Daniel had with his hands. Numbness in his hands & wrists also his hands have a slight tremmor that never went away. It got better & only shows up with fine motor skills now that he is off the med. It is listed as a side effect on the drugs info packet. Albiet a...
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