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Crohn's Disease Forum

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  1. susie

    An In-Depth Analysis of a Piece of …' Uh, You Know

    An In-Depth Analysis of a Piece of …' Uh, You Know I thought the forum could appreciate it... An In-Depth Analysis of a Piece of Shit (...) "stool specimens were categorized into one of five consistency categories: (i) sausage-shaped (equivalent to type 3 on the Bristol Stool Chart (BSC)...
  2. susie

    What is the Optimal Therapy for Crohn's Disease: Step-up or Top-down?

    David, you´re SO great. Finding the good science among tons of vague crap, building up this amazing resource. Participatory medicine indeed! Hats off to you. And this . Love, susie
  3. susie

    Humerous, Bad, Thoughtless ,or Unbelievable Comments

    Hi guys, I saw this and thought of you all. Keep on being awesome. Love, susie
  4. susie

    Smoking and Crohn's

    the evidence is sorta flimsy My two cents on the subject of smoking. Best of luck.
  5. susie

    I want to get some Mutaflor (probiotic), any Canadian out there willing to help?

    Hey guys, my friend just told me today that he seems to be having Salmonella this time, which is probably different from the usual once-a-month flare up but still, I think is time I do something more that trying to get him to go see the specialist so I'm planning to build a kit with specific...
  6. susie

    I NEED to help.

    Hi, I just wanted to say that I feel for your boyfriend but also for you: it is heartbreaking to feel useless on the face of pain that doesn´t go away and can´t be transferred to a different person at least for a bit :( And you guys are so young! Crohn's on top of all the stuff going on already...
  7. susie

    Punch in the Gut

    Oh, and also, about the smoking, I'd say that the evidence is not clear enough for you to flagellate yourself about it. What has been shown is that people who smoke, or who have smoked in the past, have a higher risk of developing Crohn's than non-smokers. And that Crohn's disease patients that...
  8. susie

    Punch in the Gut

    welcome aboard Hi Phillip, So sorry to hear about the series of unfortunate events who bring you to this place. But, man, it is a great place: the best kind of people with tons and tons of information, common sense, empathy and a good dose of (mostly dark) sense of humor. I think you´ll like it...
  9. susie

    Frustration

    Such a great post. Got my eyes all wet. You´re fantastic, radiating all this love & all this bubbly, shining life. Yay for your scheduled surgery, I hope that goes extremely well and you get a looong break from the pain. :smile:
  10. susie

    European diagnostic and management consensus guidelines for IBD

    sorry, try this one Thanks for noticing. The direct link worked fine just yesterday but hey, safer to click on the document link from the ECCO publications page: http://www.ecco-ibd.eu/index.php/publications/ecco-guidelines
  11. susie

    IBD Standards

    The original link is now broken, now is only: http://www.ibdstandards.org.uk/
  12. susie

    European diagnostic and management consensus guidelines for IBD

    "Crohn's disease is a lifelong disease arising from an interaction between genetic and environmental factors (...) The precise aetiology is unknown and therefore a causal therapy is not yet available (...) Many patients live with a considerable symptom burden despite medical treatment in the...
  13. susie

    Loving a man recently diagnosed...

    sounds awful all around :( Hi Smarzie, Just wanted to tell you how terrible the whole thing sounds, so sudden, so ground-shattering, so incredibly frustrating. I am in sorta a similar situation but the man in question is not as sick, not as young and I am not as close as you are, in terms of...
  14. susie

    So, guys, what's supportive anyway?

    Thanks Amy, Misty-Eyed and CrabbyRelish, you're a big help. Hey vonfunk, thanks, I also liked your earlier contribution about your boss offering do grocery shopping for you, in the sense that you appreciate that as a concrete way to lend a hand/be concerned about you, if I understand correctly...
  15. susie

    So, guys, what's supportive anyway?

    how much support is too much, exactly Yep, Mark, that. Not the same situation, of course, but I'd hate to become an additional source of exasperation. Focus on the person, not the disease? Make sure the Chronie knows you acknowledge that the pain is real even though one can take the lead and go...
  16. susie

    So, guys, what's supportive anyway?

    so, guys, what's supportive anyway? I've been reading about the ugly, cruel things some of you guys have had to listen to from friends, acquaintances, relatives. Some are mean, others are probably just ill-advised, or stupid attempts at defense mechanisms, well, who knows. Anyway, that whole...
  17. susie

    Dear dear friend seems to have suffered IBD for years

    Hi, Pen and thanks. Good idea, to give the details of his situation, it will help me too to clarify things. We live in Mexico and IBD is really just started to be recognized as a disease here (hey, even celiac disease is sorta a novelty for the medical establishment: is calculated that only 9%...
  18. susie

    Dear dear friend seems to have suffered IBD for years

    Hey Amy and Keona, Thanks for the welcome. My friend is *really* not into computers, I mean, he is still using the same desktop that I knew when he directed my thesis is 1995. He barely reads email so net forums are not a realistic option. I'm therefore appointing myself as the "designated...
  19. susie

    Dear dear friend seems to have suffered IBD for years

    Hi all, Thanks for building this great community, I'm so grateful for how powerful real, normal people + the net can be for something as scary, misunderstood and even downright dismissed as inflammatory bowel diseases. I'm a biomedical researcher (immunologist-geneticist) and even though I...
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