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Hi there, the remicade isn't working yet? Peyton's worked from the first time, but everyone is different i guess. Peyton is doing well this week, no issues so far. I have been doing a ton of research on homeopathic ways to treat crohns, I have an appt with a holistic doctor today (just a...

keep me posted on the remicade :)

my son also has a lot of anxiety, his therapist is teaching him mindfulness practices, to calm him down, its much like meditation :)

thanks for the info! I appreciate it! How's the remicade going???

thanks for the info, he pretty much hates everything, so a suppliment would be better for him :) thanks!!!!

Hello, My son (12 yrs) was taking aloe capsules for a while and then we stopped. the dr said that it wouldn't hurt if we wanted to have him on them, but wasn't sure if they helped either. My son has been on Remicade for just over a year. It was working well until this summer. They did an MRI...

hi theresa! Looks like you live near me, we are in Merrimack. My son is the one with crohns, I'm on this site to for him. He's 12. who do you see for doctors? my son see's Dr. Hofley up at CHAD Dartmouth Hitchcock, Manch. darlene

Thanks Dusty!!! Always appreciate your support!

Hey vicky, Ya, peyton usually has a lot of energy after the infusions, he was a little tired when we first got home from the benadryl, but once that wore off he was fine. Thats awesome about the weight gain, I'm so glad things are working out! Hope they figure out the anemia thing soon...

Hey Vicky, thats great that garrison got thru his 3rd infusion! Peyton had his 3rd infusion on Monday, did great, they did labs, so this will determine if we need to do another one in 6wks or if we can go all the way to 8 wks. They also will check for vitimin D levels. Peyton is feeling...

Peyton hasn't had any bloodwork since starting remicade, his 3rd loading infusion is on June 27th, so I'll ask the doctor then... thanks!!!

oooh, I didn't hear about hairloss being a side effect of remicade? Peyton has long hair too, we haven't seen any hair loss so far..... darlene

Thanks for your continued support! I love this forum, its so positive!!!!

I agree Dusty, not treating the crohns in kids especially is worse then the drugs they need to be on. Untreated crohns can cause so much havoc on the body with lack of growth, unable to absorb nutrients, etc. I hate the fact that Peyton had to have so many chemicals in his little body but they...

My son peyton when first diagnosed in 2008 was put on 6-MP (Mercaptopurine) which is also a drug used to treat some cancers. He's no longer on it because after 3+ yrs it just stopped working. On Remicade now and so far so good. I know its hard no to be scared of the meds, I didn't like the...

hey everyone! I love this site, its so inspiring to us parents to see other kids going thru the same thing victoriously, these kids are truely amazing! We had to bring peyton to an endrocyrinologist (spelled that wrong i'm sure!) yesterday, as he was exibiting signs of puberty (hair on upper...

Thanks Dusty!!!!

re: side effects of remicade Hi there, As with any of the med's out there to control crohns, there could be side effects. My son hasn't had any so far with the Remicade. We were worried about allergic reactions to the drug, but so far we've been lucky and he hasn't had any. What are you...

thanks vicky!!!

Hi Kathy, This is the first time peyton has gained anything since he lost weight at christmas time, its nice to see him hungry! But, he's still a wicked picky eater... pretty much doesn't like anything! Its frustrating! I'm hoping he'll grow out of the pickiness! Brians not gaining?