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Crohn's Disease Forum

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  1. B

    New symptom

    hey there, Yes I get small sores on my body and friends of mine get them on there eye lids. They are all on more meds than you have listed but are also always in an inflamated state to some degree. I believe it is the Crohn's disease activity more than the meds as I have them on and off. I have...
  2. B

    Had to stop LDN

    Kev, Yes Cimzia is the new one. It gets delivered to the system differently than Humira and Remicade. It goes by a PEG system. Where the other two are delievered into your entire system. I was on Remicade for 8 years and after my colostomy, I developed Lupus symptoms. I had a 50/50 chance it...
  3. B

    Had to stop LDN

    Hey BB, Thank you so much for the input! I went to your threads because I knew something was wrong the night I took it and you were reporting your symptoms. I related :) I knew it may not work well with the Cimzia but I didn't expect this to happen. The doctor is not a GI and is going off the...
  4. B

    Had to stop LDN

    I am new here and thought I would find out more about LDN from those of you who take it. I have learned alot in the short time I have been on here! I have been on Cimzia for about 5 months. I had my shots 2 weeks before getting LDN @ 1.5mg to start a 2 week course. The first night I was only...
  5. B

    One month on LDN

    Hey Bos, I just started LDN three days ago and also got the med from Irmat. They told me they do not use lactose filler. I did ask, as I am lactose intolerant. You are right they are top on the list for compounding pharmacies from the LDN site! I was just going to stop this drug because it...
  6. B

    Always in search of more info

    Hi, I have had Crohn's disease for over half my life. I am always in search of others who courageously battle this often vicious disease. I have been through every drug and now have a colostomy, as of last year. Where am I going next to quiet this disease of mine? Well....LDN. Hence how I found...
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