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He is already on Stelara and it appears to be helping but not 100% and may be losing some effectiveness. However it appears his doc wants to discuss keeping him on Stelara and maybe doing something else. We will see. I wonder if cycling Uceris every 3 months for 8 weeks would be a good thing...

It is good to know their hesitation. Uceris has worked very well for him so if he did change to a new biologic, I imagine he would go on Uceris for 8 weeks as a bridge. Stelara is working right now for 90%+ of his GI tract and rectum can be treated with suppositories but I really wonder if an...

Thanks for your information. The doctor said in an email today that he is not planning to change Stelara but wants to discuss in person as there are a lot of nuances to consider. It is controlling most but I would prefer to move to Humira to see if that does a complete job. He has started canasa...

It certainly could be inflammation in the colon....if you really want to know then a colonscopy is needed. My son started with Crohns in ileum only. Then about 4 years later it was all over the colon. That can happen....however your FCP is certainly high but not crazy high....my son has been...

Thanks, we did learn that is a precancerous type of polyp even though his was small(7mm) and with no dysplasia. We are glad he will get frequent scopes anyway because of Crohns. They said it was sporadic and not related to Crohns. What is interesting is that his dad had what we now know is a...

Thanks, I am guessing he will need more frequent dosing with humira and remicade given his past with biologics. His job this summer (he did an internship where he will be working) had him working pretty frequently on Saturdays and many Sundays but he may be able to schedule infusions. I hear...

Stelara was his first biologic. We are not sure what they will recommend next. He will be starting his first job in June (senior in college now) as an investment banker working very long hours....this has been his dream since high school. He is thinking he would rather Humira so he doesn't...

Hi Everyone, My son (age 21) had a scope today (6th in 4 years). He was dx with Crohns at age 13 and it was just in terminal ileum at that time. At some point in late high school it likely went to colon. He was put in Stelara his freshman year of college at age 18. Scopes since that time...

My son had to move to every 4 weeks after the first year. It made a difference and as you can see in this thread, it appears to be that way quite often so 12 seems too far out. You can ask to have your blood levels of Stelara tested at 11 weeks after injection to see if they are too low and...

Have your levels been tested and if you developed antibodies? I would test for that first. My son stopped responding after a year and levels were low with no antibodies so they increased dose to every 4 weeks. I have also heard of a re-loading dose and adding in methotrexate or other med to...

Thanks, the issue may be having someone there to sign for the injection. I can find out from the hostel I guess. I worry about a house of young adults leaving the fridge open and not getting it in the fridge properly. He will be working 60-80 hours a week so won't be there much. There is a...

Hi Everyone, My son will be doing an internship in San Francisco (down town financial district) this summer and will need 2-3 Stelara injections when there. He has not been able to give them to himself. Do you know if we can arrange to have them shippped to a medical office downtown and pay...

Well the Imuran definitely is not the drug for him and did cause the low platelets...they went right back up to normal after a week off the drug. In a way, I think that is a good thing due to the cancer risk in young men with Crohns. Now we know he can't take it anyway and was only on it for 3...

Well the Imuran definitely is not the drug for him and did cause the low platelets...they went right back up to normal after a week of the drug. He really still doesn't want to take MTX. He isn't a huge drinker but does exceed 14 per week at times as a college kid and turns 21 next month. I...

Just got results of CBC just 6 days after last test and platelets are now 78 from 121 last week! I called my son and told him to stop taking the Imuran. Plan to call/email doctor and ask about what to do next. Does anyone know how long it will take to see them go back up? He has only been on...

Yes, let's keep each other posted about this. I plan to ask to have him go to MTX pills (if they agree) if Imuran platelets remain low. My son would get headaches for about a day after his injections years ago but not every time. He was awful at taking the folic acid and I have heard that...

My son is not on remicade by his IBD docs do prefer remicade for the easily ability to dose. That us likely what he would go to next if adding Imuran to Stelara does not do the whole trick. Stelara is working but not 100%. Of course, Humira is a bit easier lifestyle since you don't need to go...

Thanks for the input Little Penguin. I have to say that what your wrote is really freaking me out after years of putting off thiourprines because the the risk HSTL. My son refused to add MTX to the Stelara because he was on it and didn't like the headaches and would have done the pills but the...

Hi Everyone, My son has been on Stelara for 2 years. Initially every 8 weeks and then every 4 weeks for the past year. It was helping but not 100% so we added Imuran 2 weeks ago. His bloodwork all looked good today except his platelets were low... 121 when 150 is low end of normal. Doctor...

Thanks for your feedback. I was wondering if adding something else really boosts the medication. I know it is best to stay on this one. He has been on it for 2 years and this is his first biologic. Knowing it is less likely to have antibodies against it is interesting. I did not know that...