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  1. Funlovinpikey

    Need some opinions on latest doctors visit!

    The azathiaprine didn't work for me at all. He has given me both because he doesn't want me on preds forever. With this set back though I'm gonna be longer getting off em. Nickname is from uni, stuck with since, random I know. You should be in the bar with us when the lads shout me....dodgy looks!
  2. Funlovinpikey

    Need some opinions on latest doctors visit!

    I'm in 30mg pred and 10mg budes, looong to reduce pred over next couple of months once under control. If no luck, moving to remicade, but apparently require a chest zest prior to the course. Fortunately my private med insurance should pay for the first few but if it needs to continue then it's a...
  3. Funlovinpikey

    I don't know what to do...

    ....don't hit send before your finished typing the post. Damn IPhone app. :) We all hit low points, hits how we deal and get through them that defines us! Take care and good luck for the 19th..... X
  4. Funlovinpikey

    I don't know what to do...

    Good luck AK, thoughts from many are with you, remember the beauty if this forum is we share experience/emotion that our family are unable too so it always helps to spill your thoughts and feelings on here. Keep your chin up and
  5. Funlovinpikey

    Only me....

    Thanks for the feedback all. Sticking on pred at 25mg for next Month or so then reduce. If that doesn't work, remicade by the looks of things. Any thoughts in remicade? I'm checking the dedicated forum too. Hope all are well!
  6. Funlovinpikey

    Any weight lifters/body builders on here?

    England dude, I feel your pain on the food side. I can't tell the difference between hunger or crohnie pains, so frustrating. And when I eat I know I'll suffer for an hour or so after too. You CA based? Paul,
  7. Funlovinpikey

    Only me....

    Hey Joan, Thanks for the response, it's really the first time I'm opening up and talking about it. My friends and family all see me suffers and like most have my best interests at heart, but they understandably can't appreciate what I'm going through, even if I look well. I'll take a look at...
  8. Funlovinpikey

    Any weight lifters/body builders on here?

    Good to see this type of chat on here. I'm 27yr old London guy had crohns 3 years, currently struggling hard with it. Make the gym barely frequently but when I do it's the same routine. With the lack of energy, eating and meds (pred and buden) it's hard. I'm trying to focus on the diet bit...
  9. Funlovinpikey

    Have you been tested for Vitamin B12 Deficiency?

    I'm pre-op and have had numerous blood tests, deficient so now on 3monthly jabs for B12 ongoing. Sometimes after being on the jabs a while you build higher levels because the drop inbetween jabs is not long enough for the levels to return to bottom. That means you could have a blood test, it...
  10. Funlovinpikey

    Only me....

    (and yes....I'm new to this forum!) :)
  11. Funlovinpikey

    Only me....

    I'm sure like most, but the bloatedness, Pain and at times agony is doing my nut. I've been off work for 4wks and have further blood tests tomorrow before an appointment on Tuesday. Currently in pred and buden but I've got a 70cm stretch of my large intestine that's quite badly inflamed. Tuesday...
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