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Rebecca I'm so sorry. Ive been waiting for days to hear what was wrong with me and the idea of having any lesions was so frightening for me I nearly burst into tears when he told me it was okay. Was your MRI done with contrast? My symptoms are so strange. My left side continues to feel as if...

How are Americans so blind to realize how unfortunate it is to be caught in a position when you need to choose between paying for a cancer treatment and a mortgage. And that you live in a first world country and accept this is beyond me. I'm a Canadian and I've never had to face this problem...

Hey I just found this post and I'm curious how your doing and what was decided. On two occasions during a crohns flare I have had neurological symptoms. The first time it was two years ago the crohns was flaring but not as severely and it eventually became. I began to notice over a 24hour...

Honestly I felt that Salofalk did nothing for me. I was on enemas for 6 months then 4000mg daily then enema and the pills and finally I had to take the prednisone. If you Crohns hasn't settled down you may need to go on imuran or something stronger with the prednisone. How long were you on...

In my experience joint pain may come on once you are off prednisone and will last for generally a month or two. Sometimes towards tapering to the 5mg but not when you are taking it full force bc it is an anti-inflammatory drug used for decreasing inflammation often even in rheumatology...

So I had a b12 shot yesterday. This time in my left arm. At first it made no difference but by the end of the night I could feel a lot more pain in the parts of my arm that had felt very weak. Granted I am noticing every night the pain is worse and the feeling begins to retun slightly. My...

Thank you all so much for your support and responses. I'm seriously drained and I'm a really happy positive person so that's saying a lot!! But hearing that MS is still a worry freaks me out. I am however relieved to hear your answers. The first time this happened I really blew it off...

So the neurologist says b12 is unlikely because it would occur in my entire body not just on one side but that taking the shots is still a good idea. The M S is still on the table which is very scary. Again I'm being told that with Crohns being such a complex disease there is a chance that...

Thanks. I just saw your post. I'm having shots once a week. It has been way lower though, it was at 98 last year. I was tired but this didn't happen. I'm getting them anyway hopefully it will help with the recuperation. I have an appointment to see a neurologist this week so hopefully they...

Thank you, My b12 was 133 so not high but not low. I got a shot on Wednesday and it didn't help. Ms was ruled out by a neurosurgeon who was kind enough to look at my images. Since the neurologists weren't moving quick enough to get me an appointment. My head is extremely foggy especially on...

Okay so have any of you ever had any numbness or tingling in your body that could not be linked to meds. I have now had his happen to me twice. Both times I was having a flare but was on no meds the first time. I have also had flares and been on pred and imuran and not had this happen. My...

I read your post and I wasn't surprise at the number of responses. Both my husband and I have been on pred. I remember finding him wide awake at 3am watching tv or online. And now that is my life. It gives you lots of energy which is awesome unless your on a counter active drug as well that...

They wont let me request my own bloods. Here in Canada a doctor has to give you a form and then you can go to a lab. I am going to see my GP on Wednesday so if I don't speak to my gastro by then I'll have her do them. I don't feel pain like I have in the past. More like discomfort. I feel...

Actually I haven't done any blood work and he hasnt even mentioned any but I have read on here a few times that it should be done and so I had planned to ask about it when he finally calls. He had suggested putting me on Salofalk but he didn't feel it was going to help. He hoped that I would...

I'm on here so often lately I figure I might as well share my story with you too. Since childhood I have had tummy issues. I missed a lot of school but they never gave me an answer and I just sucked it up. It got better in my teens but when I turned 25 I suddenly started noticing my BM's were...

You can always try old fashion things like a glass of cold lactose free skim milk. I take one when i really can't take it anymore and it helps though not for too long I won't lie.

Yes my dr said Imuran would take about 6 weeks. But I was feeling so good about two weeks in (thanks to the pred) that I think I started tapering too quickly. Im normally constipated but when the pred is working I go everyday sometimes 2-3 times. When I have a flare I can be in the bathroom...

Okay so I'm wondering if anyone else has had this problem. I have Crohns colitis diagnosed nearly 3 years ago. My most recent flare had me back on 40mg of pred and 100mg of Imuran. I'm tapering from the pred but not feeling better. I'm super nauseous but hungry and while I have been eating I...

Your GI needs to be willing to ty anything. Age is in fact very wrong in thinking they are interchangeable. I did so much research on both Remicade and Humira and while the basic plan I'd attack for both meds is the same they work differently and are made of different things. Humira is...

You need a hug and sympathy and someone who understands all the horrible things that come with this disease. It's not as easy as going to the gym. Maybe you should ask your husband to research it online so he can understand better how bad this disease gets. My husband wasn't sympathetic when...