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Crohn's Disease Forum

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  1. E

    Remicade Warning

    Oliver so sorry to hear about the Kidney Cancer but great to hear you caught it in time. If my post has saved just one life, Yours, then it was worth posting it. I will pray for you for continued health. You have made a wise decision my friend. God Bless!
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    Remicade Warning

    Thank You soo much for your kind words. My intentions were not to scare anyone who is taking Remicade but just to educate the ones who didnt know or were not aware of the dangers, as in our case. Which is something I will have to live with the rest of my life. I only wish you the best and we are...
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    I need some advice

    I am soo happy to here you are back with him. You obviously love him and it really shows. He is very lucky to have you. I know from my brother and his suffering he had a girlfriend that would come sit with him everyday and literally just be there for him. She understood his disease and what this...
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    Remicade Warning

    Thanks P, I am so sorry about your nephew and thank you for your sympathy. I know this word is going to upset people but this is how i feel. My brother took the infusion thinking it was some miracle drug and like a friend that stabs you in the back this is what Remicade did. I understand...
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    Remicade Warning

    Nell Bell I understand and watching my brother suffering was the hardest thing to watch let alone be the going through it. I so felt with him to the point of getting myself sick just sympathizing with him. Nell if this is helping you then so be it. I am just happy you are aware of the dangers of...
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    Remicade Warning

    Thank You Seaofdreams and I understand and appreciate what you are saying. I am soo happy that your drug is helping you. I only wish the best for you but in response to the death trap comment I must say this is how I feel. I have seen firsthand what it has done. People like yourself feel that...
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    Remicade Warning

    Thank You Izzi's Mom, I am sorry that your beautiful daughter at the age of 5 has this disease. My brother was diagnosed at the age of 7. And Yes I agree with what you said "we must not choose a "solution" (read:cure) for the disease, but what we decide to be the best available option at the...
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    Remicade Warning

    Thank you for your sympathy. I am sorry if I scared you Nell because this is and was not my intention. If this drug is helping you than I am happy for you but I will say please just keep up on your checkups. You know your body better than anyone. And here is what black boxing a drug means: n...
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    Remicade Warning

    My brother has had Crohns disease for 32 years and the doctors put him on Remicade. He had the infusions for 2 years and experienced alot of achiness and other painful symptoms. Unfortunately I, his sister,and caretaker, did not at the time research this drug very well. I will forever regret...
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    Fistula to Bladder = painful?

    Hello, Regarding fistulas, My brother who I cared for had this problem and yes it was very painful! He was also urinating blood at one point and his fistula was behind the bladder in between pelvis and bladder. I strongly urge you to have them go in with a scope and biopsy it and some of your...
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