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  1. Ever Hopeful

    Camptodactyly - Do you have a bent pinky finger?

    It is an odd question! However both my pinky fingers bend in towards the ring fingers at the last joint. I had always thought it was from playing trumpet in my earlier days... interesting....:thumleft:
  2. Ever Hopeful

    Undiagnosed Club Support Group

    Oh Star! I'm so glad you had your scan and that they were extra careful to get EVERYTHING. I hope you get some results this time. My fingers are crossed for you! Just got back from my dr's for a follow up to my last blood tests. There were a few abnormalities, but nothing that was news to...
  3. Ever Hopeful

    Undiagnosed Club Support Group

    Oh Bozzie! ...hang in there! :ghug: I sure hope the dr's can get to the bottom of your symptoms. I'm doing significantly better than mid-week. Still working on it. My dr's office called me yesterday to schedule a follow up, so SOMETHiNG must have shown up in my blood work. That's...
  4. Ever Hopeful

    Undiagnosed Club Support Group

    Quirkysoul! Oh, how I feel for you! Are you sorting all your food allergies out on your own by trial & error? Wow! I just had food allergy testing done - it was a blood test that my naturopath sent away to place in Seattle. They have a set group of foods that they test for...maybe they're...
  5. Ever Hopeful

    Undiagnosed Club Support Group

    YAY Star!! :thumleft: Congratulations!! I'm so happy to hear you're getting the scan! I hope all goes well for you. Cat...I'm sitting on the outside & looking in. First I agree that i'd also opt for the GI who specializes in female IBD. The grouping of those two words alone would draw me...
  6. Ever Hopeful

    Undiagnosed Club Support Group

    Hi all! Wow, did I have some catching up to do. Been laying low lately; trying my best to take care. I'm on my new 'diet' now for 3 weeks. Not much of an improvement yet. It's a tad frustrating to say the least b/c once anyone hears that I have tons of food allergies they automatically...
  7. Ever Hopeful

    Undiagnosed Club Support Group

    Hi Kochie...have they ruled out gallbladder issues?
  8. Ever Hopeful

    Undiagnosed Club Support Group

    Speaking of volume...for my birthday i got a triple barrel curling iron. It's fantastic b/c it makes my hair look alot thicker & adds volume, as the hair is wavy. I've gotten tons of compliments on the days that i take the time to do my hair. If you've got the time, it's a nice change to...
  9. Ever Hopeful

    Undiagnosed Club Support Group

    Thanks Cat. I was surprised to see that both cow milk and goat milk were on my list. And i just bought a huge vat of feta cheese (love it) from costco right before i found out! My naturopath tells me that maybe once my intestines have a bit of a chance to heal up, then my body may be able to...
  10. Ever Hopeful

    Undiagnosed Club Support Group

    Thanks Carrie...I was drinking almond milk, until i found out that i'm also allergic to almonds (and soy and sunflower seeds/ oil)...which makes it tricky to find a dairy free anything b/c if it doesn't have dairy, it's got soy or sunflower oil! Sunshine. It sounds silly, but i've been...
  11. Ever Hopeful

    Undiagnosed Club Support Group

    Cat...bananas are a bit rough on the tummy...apparantly they are like having caffiene (as per my hubby's doctor). Which does suck especially when they're used as a safe food! My hubby had to cut out coke & caffiene and bananas for about 6 mos b/c of GERD. He's able to eat them again now...
  12. Ever Hopeful

    Undiagnosed Club Support Group

    Food Allergy/Intolerance Test Results Well, I had a brief follow up with my naturopath today. The results were already back for my food allergy & intolerance test. So...I should NOT eat: any dairy beef egg white & egg yolk gluten, rye & wheat fish (9different kinds including salmon & tuna)...
  13. Ever Hopeful

    What have doctors said to you??

    the weather... So I went to see my doctor yet AGAIN...things had gotten worse lately. I had taken Amitriptyline the night before the appointment. Felt TERRIBLE that day with absolutely no energy amongst other symptoms... I said to my doctor as he was getting ready to walk out the door, "I...
  14. Ever Hopeful

    Thank you entocort!!!!!!!

    That's WONDERFUL news! I'm so happy to hear that entocort seems to be working for you! Congrats! :rosette1:
  15. Ever Hopeful

    Undiagnosed Club Support Group

    Snickers...i'm sorry that you're not getting any answers. It's like you're constantly living in limbo and that's no fun for anyone. I feel for you. I hope that you will find a doctor that will not give up till they get to the cause of your illness. Sunshine, your doctor sounds...
  16. Ever Hopeful

    Undiagnosed Club Support Group

    So I had my Opthamologist and regular doctor appointments today. The opthamologist said my eyes are good (phew), and that what is presenting itself as major eye pressure & pain is completely neurological. He was going to give me a referral to a neurologist, but I told him that I had seen one...
  17. Ever Hopeful

    Undiagnosed Club Support Group

    ...not AGAIN! ugh..I had the worst night again...awake with gut wrenching pain ALL night. to and from the bathroom. finally dozed off after 4:30am and had to get up at 5:20 and get ready for work. this sucks. and the dicyclomine stopped working months ago and my tramacet didn't even work...
  18. Ever Hopeful

    I'm new here

    Hi Cindy. I noticed you're a Winnipegger too! I'd love to connect with you, if you're looking for someone to talk to. My story is also posted in here, if you want to have a read. I've only joined the forum fairly recently. I think you might be able to click on my name to private message me...
  19. Ever Hopeful

    Undiagnosed Club Support Group

    Carrie, I'm so sorry to hear about the cramps and pain. I'm no stranger to that level of pain from a period. Here's some coping mechanisms I use when my endometriosis acts up: hot baths, heating pad (you can alternate with ice packs also...to create a vaccuum effect to draw the extra blood...
  20. Ever Hopeful

    Undiagnosed Club Support Group

    Sunny Days - WELCOME! It is SO important to find a place where you feel like others understand. I am still so very thankful for having joined this forum myself. Probably much like you, I was down and out feeling incredibly alone. I just wanted to have someone to talk to that was also...
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