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Awesome, thank you for that!

Can you tell me more what you mean about calprotectin levels? What are they, and how do you manage them?

Kannassee! Thanks so much for the quick response! You hit the nail on the head with your description of an obstruction. I couldn't have put it better myself. I definitely underplayed the severity of them by calling them "little devils" :LOL: Your description almost made me have another one, it...

Hey all, It's been a few years since I've stepped on this board, so hello again! I'm a very long time sufferer of Crohns (going on 22 years) and although my day to day is "normal" by my standards (I still have liquid stools 5-6 times a day), my pain is generally under control. I'm on Simponi...

Sorry guys, I edited the post. That's what worked for me in the past. I didn't mean for it to sound like I was recommending that! -Adam

Hi guys, As a long time sufferer of Crohn's disease and lucky recipient of 6 bowel resections, I'm no stranger to partial bowel obstructions caused by a buildup of scar tissue. I've been having this problem for about 6 years now and have been hospitalized no less than 30 times because of it. I...

Hi earthshine, I live in Canada, so it's probably easier to obtain up here than anywhere else, but I get it through a friend of a friend. I can get it through legal methods as well, but as I mentioned, I'm a bit hesitant to talk to my doctor about it. I'll probably go that route soon though...

Hey all! For the very first time in my 17 year history of Crohn's, my colonoscopy this past weekend came back with the comment "Shown significant improvement" since the last scope 1 year ago. :dusty: I'm so excited. It might mean nothing at all, but I'm going to hope it means that the...

Do you have a source for that? That's the very first I've heard that. -Adam

I have an MRI scheduled for December 31st. In the meantime, I'm still taking antibiotics and the fistula hasn't stopped draining. It's pretty gross. I'm going back to the bathroom every half hour to absorb the fluid. I'm hoping like crazy that it will resolve on it's own and by the time Dec 31st...

The thing is, I don't want to wait until I'm close to death to start. I've been through 5 surgeries in the last 15 years. My crohn's is fairly "aggressive" even though I don't feel any pain. The fact is that if this is perianal crohn's, then the disease has progressed despite being on a fairly...

Hey Johnny, Oh, no no. I definitely don't have any illusions about that. I know for a fact that they're in it for the profits. What I mean to say is that Humira has been around for 10 years now and if it didn't work at all, or killed more patients than it helped, we would have heard about it by...

You guys are so amazing. THANK YOU so much for the responses. It's abundantly clear that there are varying views on the subject. JohnnyO: The Humira is supposedly going to fix the abscess/fistula that I have, says the doc. I hear where you're coming from about the risks though - hence the post...

Hey guys, It's been exactly 4 months since I last posted, and I wanted to give a solid unbiased update on my condition, as it might help some of you along the way, and I'm hoping to grab some suggestions! First and foremost, I went strict strict strict diet over the last month or so. I think...

Okay that's my bad... I haven't been on infliximab. I've been on Imuran. I imagine my doctor didn't put me on Infliximab for the same concern of intestinal narrowing. Imuran also paralyzed me. It happened pretty quickly. It wasn't a listed side effect but I got massive bruising on my legs within...

Hey Jennifer, Wow... really picking my story apart huh? lol I feel like I'm under the microscope. I'm not blaming the doctors. I know they're sharing what they've learned. But i've also read time and time again that the role of diet doesn't get taught very heavily in medical school. It doesn't...

Hey Jennifer, My 4 resections have occurred despite being on every medication available, besides Humira. The last year of my life I have come to the realization that I'm not getting better, despite the medications. I've listened to my doctors for 14 years and have still had 4 resections. That's...

I'm not sure if I agree with what you've posted 723... The SCD diet and Paleo diet both take out any bread, unleavened or not. Although Paleo allows for *some* rice, it's more of a once a month treat... not to be taken all the time. I was actually in the same boat as you with acupuncture, but I...

Twan, Wow. Thanks for sharing this. Certainly disheartening. Hopefully it's not that the Paleo/GAPS/SCD don't work, I've heard WAY too many comments that speaks to the contrary online.... but they might just not work for some people (namely, us). I've been on STRICT SCD for the last 5 days and...

Rockdawg, Your post inspires me. You mentioned you're on a very restrictive diet and feeling great. So I guess my question is: why bother with meds if you're responding to dietary changes? -Adam