Marcus44, 6mp was damaging my liver , glad to hear your of the pred ! Hoping the remicade starts to help us both , right now i have bright red poop so not sure what that is from waiting on a call back from my DR . Keep us posted in how your doing
Iriechic , i am not on any steriods , but i am still on pentasa . Ihow many infusions have you had ? I have had two already . Pop has gotten better but not much else
Hi Joshaaa, honestly i dont have an answer for that I just had my first one . I am thinking it will take a few times more for it to get in our systems and start helping . The only thing i have really noticed the last week is how over tired i am feeling but it seems to be getting better each day...
Hi Honey ,
Everything went well thank you for checking in on me . My Liver is back to normal now that i am off the 6mp , yay! Hope all is well with you
Jenn
Thank you guys . The 6mp is affecting my Liver and my numbers keep going up even tho i have been off of 6mp for 2 weeks now . I will be getting my first infusion of Remicade tomorrow a little nervous but hoping it helps . They told me I would be there for 5 hrs !
Hi everyone ,
My Dr put me on 6mp , but it affected my Liver and pancreas . I will be starting Remicade on the 28th and was just wondering what to expect and any suggestion or stories would be great !
Hi David , i need to apologize as with all this new info and stress , now i am not reading very well either .
On the gentics results all have mutation detected , ugh dont know if that makes a difference or not .
Wish i could just upload a picture of the test results
Thanks again David .To be honest I am not sure exactlly what he said that night when he called me .here's were i am at . Been having D for 3 years now will every so often have a solid one . cramps are so painful right before going and sometimes It is a rush to het there . Always feeling nausea...
I did get a copy of my Prometheus IBD sgi Diagnostic , if anyone understands these and can shed some light that would be awesome
Or a website that explains this test
result Reference
ASCA igA ELISA 17.3 < 8.5
ASCA igG ELISA. 6.3 <...
Thanks I will go look at that , i feel the more knowledge I can get the better off i will be . It is just awesome to have this as a resource , so glad I found you all . Take care and again many thanks :-)
Thank you David , as of now just the pentasa and tomorrow I have a CAT scan with contrast . I did just get results of a test I have not heard about called a C-Reactive Protein (CRP) and it was a 9.1 so going to do some research on that one .
Thank you Earnellzwifey , my mom has had this for as long as i can remember . As a child she was in so much pain . Last year she had another surgery at the age of 69 and her Dr told me he does not understand how she is alive with how messed up she is inside .
Now with my Recent diagnosis of...
Hi ,
I had orginally became a memeber to help me understand what my Mom goes thru with her CD and see if there were any other treatment that could benefit her . She has a severe case , multi surgeies and an open wound for 7 years now .
But now I have been told that I have CD , just starting...