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Crohn's Disease Forum

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  1. J

    Humira Club Support Group

    Hi everyone, I was on Humira for a couple of months last summer until i had to stop due to infections. I'm only just getting round to restarting it now, i had my 4x dose a fortnight ago and i had my double dose this morning. I know it's still early but i'm feeling good already! Less tiredness...
  2. J

    Watering can perineum

    I saw my IBD nurse today and she basically said what Dusty said. Surgeons and their crazy medical jargon eh:ytongue:
  3. J

    So who on here still likes the beer/wine

    I haven't had a drop of alcohol in nearly two years now, not for any medical reasons, just that the novelty wore off a few years after achieving legal drinking age and i sort of just got bored with it. It was quite fun at the time though but my stoma output wasn't exactly pretty after a couple...
  4. J

    Watering can perineum

    Thankfully not, that sounds horrible:puke_r: It might be a mistake, i have an appointment with my IBD nurse tomorrow for a double dose of Humira, so i'll be sure to ask her about it then.
  5. J

    Watering can perineum

    Thanks for that link Fairy but if anything, i'm even more confused now. Thankfully i've never had any problems with my urinary tract and all my fistulae and abcesses are all around my rectum:confused:
  6. J

    My son is suffering

    Hi jojo, i'm sorry to hear your son is suffering:stinks: I was about 16-17 when i had my colostomy, it was a huge decision to make at the time but for about 2 years afterwards everything was great, i even managed a school trip to Switzerland:thumleft: Sadly it didn't last as my Crohn's...
  7. J

    Scared about starting humira

    Hi sm97, you're clearly very mature for your age, it's a big decision for you to make and researching the drugs is the right thing to do. I was around your age when i started Methotrexate and honestly, i was competely ignorant of what the drug was and any potential side effects. At that age i...
  8. J

    A question to you lucky people in remission (or who have been)

    The last time i was in remission was due to Remicade/Infliximab but i built up antibodies and had a bad reaction so i stopped, now i'm hoping Humira does the same without the reaction. Good luck with starting life as an adult and i hope you're crohn's free by then:)
  9. J

    Watering can perineum

    I recently had an investigation under anesthetic of my rear end and in my discharge letter it says i have a typical case of watering can perineum. I've never heard of this term before and there is nothing on wikipedia about it, so i was hoping one of my fellow crohnies knows what it is. Thanks:)
  10. J

    Seton - 3 months later, still draining?

    Hi Lovelyss, i've had a fistula for about 6-7 years now and i've lost count of the amount of setons that i've had. Some have only lasted a couple of weeks but most stay in draining for a few months, my last one stayed in and continued draining for well over 6 months:eek2: As for medication, the...
  11. J

    My Story

    Your symptoms sound almost exactly like i had early on. Although i had suffered from constipation since early childhood, things only really kicked off when i had a bad stomach bug which triggered the bloating and fatigue that you are going through. I know exactly what you mean by that "icky...
  12. J

    My Story

    I was diagnosed with Crohn's about 10 years ago when i was about 13 or 14yo and since then i've kept things very private. I've never spoken to anyone with Crohn's or any other IBD before and find it very hard to explain my problems to other people, even my parents. So i apologise if this post is...
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