- Joined
- Nov 3, 2006
- Messages
- 514
HI every one:
I am new to this forum. I have had CD for 28 yrs. I am from Hamilton Ontario. At the point now where the DR. wants me to have surgury. That dreadful BAG. He dosnt know what else to give me. Been on every kind of drugs out there for CD people. I call myself and some other people (cronies) because we have had the desease for so long. We are like die hard batteries (keep going and going) and never give up. (lol)Had a viris in my left eye called iritis. Dr. said i would have 85%chance to see again.Waited on the transplant list for 6 months. Had the surgury and about a year later the viris came back. Now just last week I have a cateract in my right eye. they have to put me out for that. They have to go in behind my eye and suck it out with a needle. Yikes more pain. Right now dealing with fissures that are causing me great pain. Might have to get that lanced. Yikes Yikes. The drugs that I have been on are pred; cipro pentasa methotraxate,remicade, folic acid,cholestyramine powder,VSL#3,fentynal patch,oxycodone,dilaudid,beclofen,gravol,lorazepam vitamin D and multi vitamin because my bones are so brittel from being on the prednizone for so long. I have a picc-line in my left arm because iI have no viens(Very hard to find)This will be my 6th one all the others got infected. Got very sick and high fevers with those.I have also been on TPN on and off.That is kind of like a food bag that feeds you through IV or picc-line so your bowels can rest One time I was on it for 8 months no food through my mouth at all.Gained 30lbs. Then at the last place we were living Didnt no at the time) the water was contaminated my CD got worse my boyfriend has IBD and my daughter has major headaches we all are losing are hair . The water had e-coli and cauli-form in it. Went to dr. after dr. to finally (after mths. and mths.)find out that it was the water. Couldnt sue any one because they had to find where the sourceof the contamination was coming from. I think it was the Grand River. NO-one wanted to take our case no-one woulld help us. Not even our mp, mpp public enviroment ministry of health,or lawyers. So we moved from that town as soon as we could.So much for that story. NOw my bones are brittle i have to take a pill called actonal once a week. Make sure that I dont fall. Because there is a good chance I could break my hip and I really dont want hip surgury.I have had enough surguries for right now. Thats most of my story. Thanks for reading and letting me join this forum.
Later T Smith
I am new to this forum. I have had CD for 28 yrs. I am from Hamilton Ontario. At the point now where the DR. wants me to have surgury. That dreadful BAG. He dosnt know what else to give me. Been on every kind of drugs out there for CD people. I call myself and some other people (cronies) because we have had the desease for so long. We are like die hard batteries (keep going and going) and never give up. (lol)Had a viris in my left eye called iritis. Dr. said i would have 85%chance to see again.Waited on the transplant list for 6 months. Had the surgury and about a year later the viris came back. Now just last week I have a cateract in my right eye. they have to put me out for that. They have to go in behind my eye and suck it out with a needle. Yikes more pain. Right now dealing with fissures that are causing me great pain. Might have to get that lanced. Yikes Yikes. The drugs that I have been on are pred; cipro pentasa methotraxate,remicade, folic acid,cholestyramine powder,VSL#3,fentynal patch,oxycodone,dilaudid,beclofen,gravol,lorazepam vitamin D and multi vitamin because my bones are so brittel from being on the prednizone for so long. I have a picc-line in my left arm because iI have no viens(Very hard to find)This will be my 6th one all the others got infected. Got very sick and high fevers with those.I have also been on TPN on and off.That is kind of like a food bag that feeds you through IV or picc-line so your bowels can rest One time I was on it for 8 months no food through my mouth at all.Gained 30lbs. Then at the last place we were living Didnt no at the time) the water was contaminated my CD got worse my boyfriend has IBD and my daughter has major headaches we all are losing are hair . The water had e-coli and cauli-form in it. Went to dr. after dr. to finally (after mths. and mths.)find out that it was the water. Couldnt sue any one because they had to find where the sourceof the contamination was coming from. I think it was the Grand River. NO-one wanted to take our case no-one woulld help us. Not even our mp, mpp public enviroment ministry of health,or lawyers. So we moved from that town as soon as we could.So much for that story. NOw my bones are brittle i have to take a pill called actonal once a week. Make sure that I dont fall. Because there is a good chance I could break my hip and I really dont want hip surgury.I have had enough surguries for right now. Thats most of my story. Thanks for reading and letting me join this forum.
Later T Smith
