17 year old with Crohn's (advice please)

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hello

My name's Fraser, i'm 17 and from New Zealand :). About a year ago I started having stomach problems, diarrhea, pains and anxiety. We all thought it was just due to stress at the time because my grandfather had just died and i had my end of year school exams coming up and so I blamed that. I went to the doctor and he swore that I had Giardia or an infection and so gave me antibiotics. It didn't help and I went back, this time he told me I was just stressed and this was all natural. I can tell you that pooping blood and wanting to throw up every day was not normal. He then blamed IBS and prescribed muscle relaxants. guess what, didnt work. I went to the emergancy room several times due to the huge amount of pain and they blamed gas. I was hopeless and so was everyone else. Throughout the rest of the year everything went up and down, i missed alot of school and ALOT of weight. I went from 69Kg to just 57Kg in the span of a few months. Nothing seemed to be working. I had diarrhea for months at a time and the blood came and went. I finally got in to the local surgeon and he started to take it seriously. I had a colonoscpoy, endoscopy, pillcam and many many scans. He then diagnosed me with crohns and put me on 8 Pentasa a day as well as prednisone and foam enemas. I was 17 and had already been through more than anyone in my school. I was the only one to have a colonoscopy in my school and the only one of my age with this problem in my town. My friends thought it was just a stomach problem and would go away but i knew otherwise.

The pentasa seemed to be working, i was getting better and gaining ABIT of weight. But then one day i woke up and couldnt move, it was like there was this pressure in my chest and when i moved i would through up straight green bile and blood. I wanted to die. I got taken to hospital and finally admitted. At this time it was 4 days before christmas. They had no idea what was going on and didnt help at all. I wanted to stop the pentasa but they wouldnt let me. I was released on boxing day and as soon as i got home I got rid of all the Pentasa, i couldnt do it anymore. A few days latter i felt great. Then the GI called and said that my fecal calprotectin result had come back and it was well over 600, indicating something serious. But i felt great, how could that be? He put me on asacol and swore it wouldnt hurt me, but it did. Vomiting, blood and pain and more diarrhea than to fill a pool. I stopped that by myself and since then only taking pro biotics and multi vitamins. But i cant gain weight and i cant get over the anxiety and depression that this has caused me.

My girlfriend is the only one that helps and takes me seriously. I have lost the bonds i shared with my friends and they all think I'm just weak and a "pussy", they dont take it seriously and think i'll just get better like that. recently i was away from school for 3 weeks and when i got back no one even said much, they acted like it wasnt a big deal, asking if i was coming out this weekend and getting on it and saying i need to get out of the house. I wanted to scream, how can they know what it's like? Every waking minute i am thinking about this, how it affects me and what will happen after school. I am having counselling but i need to talk to people who know what it's like. What can I do? I feel like i have lost my friends and no one takes me seriously. Please give me advice.

Fraser
 
Kia Ora Fraser!

sounds like you've really been through the mill :-( I can't really help much because I've only just been diagnosed myself and am not on meds yet.. but there're some amazing people in here who will pop in and share their knowledge I'm sure :) kia kaha
 
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