Hi!
I'm a 27 year old high school teacher. I love the outdoors - camping, hiking, kayaking, motorcycles, etc. this has been problematic lately.
In 2008 I was diagnosed and put on pentasa. Worked decently. In 2012, I started taking humira and basically felt like someone without the disease. It was great.
In June 2014, I began to have constant fevers and butt pain. My GI couldn't figure it out. This went on until August, when I took myself to the er. They gave me antibiotics for a perianal abscess and sent me home. After those, there was no change - back to the ER. They cut open the abscess and it didn't drain. I was admitted for iv antibiotics for 5 days then a week later had a fistulotomy.
I was better, but not perfect. I missed many days of work this year. In April 2015, I was admitted to the hospital for C diff. My ct scan looked terrible, but I was sent home in 3 days. My GI said my ct "wasn't that bad." When my surgeon saw it, he sent me for an Mri and determined I needed a colon resection.
My nutrition was extremely low so I was admitted to hospital 10 days prior to surgery for tpn and antibiotics. Surgery was June 5. 25 inches were removed, but I didn't need an ostomy. My healing went well and after 14 total days, I was sent home On TPN.
Then I got a fever and knew something was wrong. Ct showed an abscess so I just went and had a JP drain put in. Interventional radiologist said there's actually 2 abscesses, and he hopes they both drain through the one he treated.
I'm a mess. My girlfriend has been the most supportive, positive, and best nurse ever, BUT we've lost all the fun we like to have. I've been down for the better part of a year and she needs to have her needs met, too. I know it isn't my fault/choice, but I feel terrible.
It feels like one problem after another. I can't live my life the way I want. I'm young and want to have experiences. And my biggest fear is becoming so bad that I can't work and support us. I think of all the negatives and it is scaring me to death.
Could this just be a bump in the road? Once we get the abscess sorted out maybe I'll go back to being okay for a while? I hope. This has been hard. We have even been looking into medical marijuana. I'll try almost anything to feel better.
I'm a 27 year old high school teacher. I love the outdoors - camping, hiking, kayaking, motorcycles, etc. this has been problematic lately.
In 2008 I was diagnosed and put on pentasa. Worked decently. In 2012, I started taking humira and basically felt like someone without the disease. It was great.
In June 2014, I began to have constant fevers and butt pain. My GI couldn't figure it out. This went on until August, when I took myself to the er. They gave me antibiotics for a perianal abscess and sent me home. After those, there was no change - back to the ER. They cut open the abscess and it didn't drain. I was admitted for iv antibiotics for 5 days then a week later had a fistulotomy.
I was better, but not perfect. I missed many days of work this year. In April 2015, I was admitted to the hospital for C diff. My ct scan looked terrible, but I was sent home in 3 days. My GI said my ct "wasn't that bad." When my surgeon saw it, he sent me for an Mri and determined I needed a colon resection.
My nutrition was extremely low so I was admitted to hospital 10 days prior to surgery for tpn and antibiotics. Surgery was June 5. 25 inches were removed, but I didn't need an ostomy. My healing went well and after 14 total days, I was sent home On TPN.
Then I got a fever and knew something was wrong. Ct showed an abscess so I just went and had a JP drain put in. Interventional radiologist said there's actually 2 abscesses, and he hopes they both drain through the one he treated.
I'm a mess. My girlfriend has been the most supportive, positive, and best nurse ever, BUT we've lost all the fun we like to have. I've been down for the better part of a year and she needs to have her needs met, too. I know it isn't my fault/choice, but I feel terrible.
It feels like one problem after another. I can't live my life the way I want. I'm young and want to have experiences. And my biggest fear is becoming so bad that I can't work and support us. I think of all the negatives and it is scaring me to death.
Could this just be a bump in the road? Once we get the abscess sorted out maybe I'll go back to being okay for a while? I hope. This has been hard. We have even been looking into medical marijuana. I'll try almost anything to feel better.
