28 years with Crohn's

[moishepipik]

I was 19 when I was diagnosed with Crohn's. I had always had constipation, but what got me to go to the doctor was an anal fissure. This fissure was so painful that I could not sit down or stand up without any pain. The doctor diagnosed me with Crohn's after doing my first of many colonoscopies. Over the years I have had my share of fistulae with the scar tissue that is associated with it once the fistula heal. I have peri-anal disease because of Crohns, and on September 8, 2014 I had my 4th balloon dilation of my anal canal because of scar tissue. My canal narrows to a point that the stool passes thru an opening about the size of a straw or even smaller.

Thank you for allowing me to tell my story.

 

[DJW]

Hi and welcome.

 

[David]

Greetings and welcome to the community.

Wow, that sounds really rough! My heart goes out to you.

What medication are you currently on?

All my best to you.

 

[moishepipik]

Hi David,
The medications I am currently on are Lialda which replaces Asacol which is no longer made, and I am on 6-Mercaptopurine or the technical name is Pureinthol.

 

[David]

How long have you been on the 6mp? Has your doctor ever brought up the idea of Remicade?

 

[my little penguin]

^^^ yeah that
Remicade seems to have a good success rate with perianal crohn's .

 

[dave13]

Welcome Moishepipik,

Do you have setons due to the fistulas? Do you see a colorectal surgeon for your fistulas or a GP? I was misdiagnosed for years by a GP,thought my multiple fistula were very bad hemorrhoids.I was trusting and naive.

I am currently on Remicade. You are not currently on it,but has your Dr. talked about it with you? Good luck!