Hi all.
My 3 year old son had just been diagnosed with Crohn's. His endoscopy and biopsies were clear, thank goodness, but he has fistulizing perianal disease. Currently he has a fissure, skin tag, and 2 maybe 3 fistulas... one of which is getting bigger very quickly. He had a hypersensitivity reaction to Flagyl, which is a real kick in the teeth as it worked brilliantly.
We saw the surgeon yesterday, alongside our Gastroenterologist. They're going to do an MRI and then operate and place setons. He may need a stoma to let the area heal without the added worry of the fecal matter.
My question really is... has anyone else started with isolated perianal disease? Has it progressed anywhere else in the gut and if so how long did it take? Did the setons cause problems etc. And if they had perianal surgery was a stoma formed at the same time?
Thanks in advance for any feedback, it's a really scary time and we're extremely worried about his future seeing as things are this bad at the beginning.
I've posted this in the kids with crohns forum too, sorry if anyone has seen it twice!
My 3 year old son had just been diagnosed with Crohn's. His endoscopy and biopsies were clear, thank goodness, but he has fistulizing perianal disease. Currently he has a fissure, skin tag, and 2 maybe 3 fistulas... one of which is getting bigger very quickly. He had a hypersensitivity reaction to Flagyl, which is a real kick in the teeth as it worked brilliantly.
We saw the surgeon yesterday, alongside our Gastroenterologist. They're going to do an MRI and then operate and place setons. He may need a stoma to let the area heal without the added worry of the fecal matter.
My question really is... has anyone else started with isolated perianal disease? Has it progressed anywhere else in the gut and if so how long did it take? Did the setons cause problems etc. And if they had perianal surgery was a stoma formed at the same time?
Thanks in advance for any feedback, it's a really scary time and we're extremely worried about his future seeing as things are this bad at the beginning.
I've posted this in the kids with crohns forum too, sorry if anyone has seen it twice!
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