3rd infusion in and starting to flare?

[Mzjenny]

Hello everyone. I had my 3rd infusion last Monday and since I started the remi I've felt the best I have In a long time. The side effects have been crappy and I always feel so fatigued 3 to 4 days after my infusion but other then that my GI sympthoms have subsided.....until last night and NOW. I'm starting to get bad bad cramping/pain on the left side (crohns is located in the descending colon) that is so bad I'm curled over on the bowl with the urge that I'm going to have massive diarrhea but then only a sm formed bm comes and with in a minute the pain and cramping comes back. Could this be a sign I'm starting to flare and the remi isn't helping me anymore? I'm so disappointed right now. Just when I thought my life was getting back on track this nightmare seems to be coming back.

 

[crohns4ever]

I was on remi about 10 years ago it did work well for me I had some pain on my left side also but my GI told me that i was not in a flare but that it would take at least 4 infusion to be in theraphy mode so hay hang in there it will get better alot better. But he took me off remi to try something new for 4 years and it not work and now back on remi. So trust me it will work.

 

[Mzjenny]

Thank you for the reply. Since the pain and the formed bm it has now turned into cramping pain and diarrheah. Just so frustrating!

 

[crohns4ever]

yes I know your pain I know what your going through but trust me when I say after your 4th treatment it will be up hill. I know it sucks right now but it will get better for you.