Hello!
My niece was diagnosed with chrons disease when she was around 5 months old(that was about 6 years ago). I never paid much attention to her treatment ... but recently I was diagnosed with IBD. Because my niece is a very hard case of chrons I went into panic/frenzy mode and immediately started a thorough research on possibilities of treatment and side effects.
For now I consider myself lucky because my disease is constricted to the colon and considering all indicators it's probably UC ... and Mesalazine seem to be working almost perfectly.
My 6 year old niece is having serious problems with medications. In six years ... she was in remission for 1 month total.
She hasn't been growing for a year and she has a severe osteoporosis. She has been taking Prednisone for 9 months and because of osteoporosis she must stop now. Doctor says he will put her back on Prednisone if her condition gets worse. She is supposedly too young to take Biological medication.
I find it very scary that if her conditions gets worse they will put her back on Prednisone. She hasn't been growing for a year and severe osteoporosis is not something I take lightly.
What do you think? Should we try to get a second opinion? Are corticosteorids really preferable to biological?
What about stem cell transplant? What are the possibilities of a child living in a central Europe to actually enroll on this kind of program?
If this was your kid ... what would you do?
Thanks and sorry if my english is bad.
Any advice is greatly appreciated!
My niece was diagnosed with chrons disease when she was around 5 months old(that was about 6 years ago). I never paid much attention to her treatment ... but recently I was diagnosed with IBD. Because my niece is a very hard case of chrons I went into panic/frenzy mode and immediately started a thorough research on possibilities of treatment and side effects.
For now I consider myself lucky because my disease is constricted to the colon and considering all indicators it's probably UC ... and Mesalazine seem to be working almost perfectly.
My 6 year old niece is having serious problems with medications. In six years ... she was in remission for 1 month total.
She hasn't been growing for a year and she has a severe osteoporosis. She has been taking Prednisone for 9 months and because of osteoporosis she must stop now. Doctor says he will put her back on Prednisone if her condition gets worse. She is supposedly too young to take Biological medication.
I find it very scary that if her conditions gets worse they will put her back on Prednisone. She hasn't been growing for a year and severe osteoporosis is not something I take lightly.
What do you think? Should we try to get a second opinion? Are corticosteorids really preferable to biological?
What about stem cell transplant? What are the possibilities of a child living in a central Europe to actually enroll on this kind of program?
If this was your kid ... what would you do?
Thanks and sorry if my english is bad.
Any advice is greatly appreciated!
