___Teenager with Crohn's disease____

Crohn's Disease Forum

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Mar 4, 2012
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Hi to everyone here on this forum. My name is Bruno, i'm almost 18 years old, i live in Croatia ( Central Europe ) and i was diagnosed with Crohn's disease in summer 2011 ( July ). I wanted to write my story because obviously i am bored at the moment and i spend a lot of time on computer doing nothing smart so i've decided to write a post here to support you guys and maybe to get some support from you, my dear related members. So, before i was diagnosed with that incurable disease i had a really normal life, no complications or anything serious. All the symptoms that i had started at May 18th, that is my birthday. How weird huh? :/ First symptom that i got was anal fissure. I remember i woke up for school and i felt some pain in my anal area when i was walking and sitting in school. When i came home i told my parents that i have some pains down there and we went for a doctors advice. She told me that i have anal fissure, gave me some cream and it passed away after a week. Then i got temperature, first it was 38 something, but it never falling under the 37. I've had cramps also but they were not related with food and whatever i ate i had to go to the bathroom. Doctor put me on a liquid diet ( tea + toast bread ) for a week. I lost weight. It didnt help me so i went in a hospital for a 10 days observation + examinations. I had to do colonoscopy, gastroscopy, digital rectal examinations, blood tests, urine test, abdominal ultrasound and thats all i think. The worst examination was colonoscopy... I had to drink 9 liters of bitter laxative tea without any food. It was soo hard, i thought i was going to die. Every 5 minutes i had to go to the bathroom. Worst day ever. Colonoscopy and gastroscopy was done under anestesia so it didnt hurt a thing, only after the gastroscopy when i woke up i felt little pain in my throat, thats all. After all those examinations the decision was up to me: cortico steroids ( side effects but you get better very fast ) or enteral nutrition ( 6-8 weeks, long process, guaranteed remission. ) I've chosen enteral nutrition and it was smart move, my doctors said. After 8 weeks on a Modulen IBD ( 2500 ml per day without any food, just water i had to come again in hospital for a control ecxamination ( blood tests ). Blood tests were amazing, CRP; sedimantion and fibrinogen were so low, like doctors were suprised how well i reacted on Modulen. The longer you're on Modulen, the more better are results after. So i've decided to drink it 2 weeks more ( 10 weeks all together ) and then i came to the hospital for adaptation on food ( 10 days slowly consuming food like soups, tea, bread ) After that i was finally released home. I sticked to the eating plan - no junk food, only healthy, fresh home made. Lot's of tea, fruits, vegetables, cooked soups and meat ( NOT fried ) olive oil not sunflower and ofcours 250ml Modulen per day. I really didnt have any problems with drinking Modulen except first day, it was NEW for me, but the second day i was addicted to it. Like i can't live without it. I love the flavour. Its craaazy cause i've read so many negative opininons about it like: its awful, i cant drink it, its hard, it has clumps. I really havent noticed any of that and im on Modulen almost 9 months ( 250ml per day ). Its really helping. But its up to you if you can make it without consuming any food. But now i eat food normally and drink modulen if i want to ( i dont have to ) but i want to cause its a good thing for my bowels. Im also on medications: Imuran 3 tablettes per day, pentasium 6 tablettes per day. I was on Folacine and Controloc also but not anymore. I don't have any problems. No diarrhea. No crumps. No temperature. Modulen was a life savior. I RECOMMEND IT TO ALL OF YOU! Do it for your health. Love you all. Have faith.

Any questions about Modulen? Feel free to ask me. I would love to talk with you all. Have a nice day.

Bruno.
 
Hello Bruno,

Im 14 years old and I was diagnosed with Crohn's in September last year. I was on Modulen for 4 weeks but it did not help me so i had to come off it at the 4 week mark. Since then I have been on loads of different medicines but none have worked for me so far. Did you add any flavoring into your Modulen or just leave it by itself?
 

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