- Joined
- Nov 14, 2011
- Messages
- 950
Bit of a long post ahead - sorry.
Hi all,
Went for my 2nd infliximab infusion today. Got 1 hour into a 2 hour infusion and started feeling dizzy. I am talikng having to grip the edge of the bed because I thought I was going to fall off.
They reduced the flow and waited to see if that helped. I got dizzier and then after 1 hour 30 I felt like I couldnt breathe and had to gasp to get any air.
Well they acted very fast and turned off the infusion and flushed the line through with saline. They took my blood pressure and it read 208/110. Mmmm was a bit worried about that!
Anyway it eventually came down over the next 2 and a half hours to 158/95. They gave me piriton and hydracortisone(sp?)
They phoned my IBD nurse and she left clinic and came up to see me. She was so lovely and nice and told me not to worry. But I knew she was sugar coating it for me and I asked her not to, so she has told me how it is.
Basically if my colonoscopy on Thursday shows no sign of crohns in my small bowel I will be having a discussion in the near future with my consultant and a colorectal surgeon to see what surgery would suit me best - j-pouch or permanant/temp ileostomy, they are not sure yet. If it does show crohns she said they are not sure what to do so will call a meeting of myself, her, my consultant and a surgeon to discuss where we go from there. Scared!!
I am upset and gutted about the infliximab, it wasnt until they said I couldnt have anymore that I realised how much I was hoping that this was my cure all.
Any and all thoughts and advice are appreciated and as always most welcome.
I am going to bed and snooze. Exhausted!!
Sharon xxxxx
Hi all,
Went for my 2nd infliximab infusion today. Got 1 hour into a 2 hour infusion and started feeling dizzy. I am talikng having to grip the edge of the bed because I thought I was going to fall off.
They reduced the flow and waited to see if that helped. I got dizzier and then after 1 hour 30 I felt like I couldnt breathe and had to gasp to get any air.
Well they acted very fast and turned off the infusion and flushed the line through with saline. They took my blood pressure and it read 208/110. Mmmm was a bit worried about that!
Anyway it eventually came down over the next 2 and a half hours to 158/95. They gave me piriton and hydracortisone(sp?)
They phoned my IBD nurse and she left clinic and came up to see me. She was so lovely and nice and told me not to worry. But I knew she was sugar coating it for me and I asked her not to, so she has told me how it is.
Basically if my colonoscopy on Thursday shows no sign of crohns in my small bowel I will be having a discussion in the near future with my consultant and a colorectal surgeon to see what surgery would suit me best - j-pouch or permanant/temp ileostomy, they are not sure yet. If it does show crohns she said they are not sure what to do so will call a meeting of myself, her, my consultant and a surgeon to discuss where we go from there. Scared!!
I am upset and gutted about the infliximab, it wasnt until they said I couldnt have anymore that I realised how much I was hoping that this was my cure all.
Any and all thoughts and advice are appreciated and as always most welcome.
I am going to bed and snooze. Exhausted!!
Sharon xxxxx