- Joined
- Jun 21, 2012
- Messages
- 8
Hi, I'm new here and have a couple of questions i hope someone can help with.
A brief history - I was diagnosed with crohns about 6 years ago but until now I have only had a few minor flare ups. I only realise now they were minor though! I was admitted to hospital due to my symptoms and very high crp (243) for 12 days. Ct scan showed bad inflammation in my whole large bowel and the scope examination showed deep bad ulcers.
I was put on IV prednisolone, 60mg which was working for a few days then stopped for some reason. Anyway, I then stared on Adalimumab, started dose of 4 pen injections, followed by 2 two weeks later and now I'm on 1 every 2 weeks.
My question is really about the side effect. I don't know how many of my side effects are attributed to the injections or my prednisolone. My ored dose is reducing and is currently at 35mg. I am tired but not sleeping well which will probably be the steroids. I have weak arms/hands legs and shakey hands. I am hoping all because of the steroids - which will disappear when they stop?
My main concern though is about the Humira side effects, particularly the multiple sclorosis one. Has anyone on here developed this and if so how quickly and what wre the symptoms at first? My worry is my lips have been tingly and I do t know if that is even a symptom? I spoke to the nurse today and mentioned it and she didn't seem too concerned but it does worry me. Does anyone have this just in their lips?
The strange thing is my bowels have really settled down but I still feel far from normal but again I'm hoping it's the prednisolone and not the Humira.
Apologies for the long post. Thanks for reading and for any replies in advance.
A brief history - I was diagnosed with crohns about 6 years ago but until now I have only had a few minor flare ups. I only realise now they were minor though! I was admitted to hospital due to my symptoms and very high crp (243) for 12 days. Ct scan showed bad inflammation in my whole large bowel and the scope examination showed deep bad ulcers.
I was put on IV prednisolone, 60mg which was working for a few days then stopped for some reason. Anyway, I then stared on Adalimumab, started dose of 4 pen injections, followed by 2 two weeks later and now I'm on 1 every 2 weeks.
My question is really about the side effect. I don't know how many of my side effects are attributed to the injections or my prednisolone. My ored dose is reducing and is currently at 35mg. I am tired but not sleeping well which will probably be the steroids. I have weak arms/hands legs and shakey hands. I am hoping all because of the steroids - which will disappear when they stop?
My main concern though is about the Humira side effects, particularly the multiple sclorosis one. Has anyone on here developed this and if so how quickly and what wre the symptoms at first? My worry is my lips have been tingly and I do t know if that is even a symptom? I spoke to the nurse today and mentioned it and she didn't seem too concerned but it does worry me. Does anyone have this just in their lips?
The strange thing is my bowels have really settled down but I still feel far from normal but again I'm hoping it's the prednisolone and not the Humira.
Apologies for the long post. Thanks for reading and for any replies in advance.
