Idont understand why your GI wont treat you. I mean if he is saying he is sure you have IBD, and especially if your colonoscopy showed thickening and inflammation, well that is definitely something. I mean I don't get why he is letting you suffer. Maybe get another doctor and opinion...
They usually won't treat unless the diagnosis is certain. The medications used for IBD come with a lot of risks and side effects, and without a diagnosis they can't work out whether the potential benefits of treatment are worth the risks. And similarly with diagnosis - just because the symptoms fit, you still need some evidence from test results to make a diagnosis of Crohn's.
SheilaLandtroop2013: did your GI tell you whether the thickening and swelling of your colon is significant? Sometimes they discover abnormalities during tests, but although things are abnormal they're not actually responsible for symptoms or indicators of disease. This could be why you've had abnormal findings but your doctor can't use them to diagnose a disease.
You said you've had diarrhoea, nausea and pain. These are less critical in terms of diagnosing digestive illness than the fact that you've lost weight (as long as the weight loss is unintentional), as weight loss can indicate a more severe problem, whereas diarrhoea and pain can be harmless (though they still affect quality of life, doctors are less concerned about that). Do you know if your weight loss is from lack of appetite and eating less, or are you not absorbing calories?
Have you had any bleeding from your digestive tract?
You should be prepared for the fact that diagnosing an illness can take a long time, and a number of tests. I know you want answers but you'll only end up feeling more frustrated if your expectations are unrealistic.
Have you talked with your doctor about trying to control your symptoms in the mean time? They are very unlikely to prescribe the harsh meds used for Crohn's as I mentioned above, but there are safer treatments for diarrhoea and nausea. Loperamide can help with diarrhoea and is a very safe drug - you can buy it without a doctor's prescription. You can also ask your doctor for domperidone for nausea. It does have a number of potential side effects, but it's far safer than most Crohn's meds and my doctors were happy for me to take it before I had a diagnosis. There are also some medications you can buy without prescription for travel sickness that can help with nausea more generally. Have you tried any pain killers? Again, there are a number of options there which do not have high risks for complications.
