Almost done with Prednisone but symptoms coming back

[Squadinho]

Don't you love it when you're almost finishing your Pred dose and all your symptoms start coming back again.

The last few weeks I've been feeling sick an awful lot, but still had my appetite and generally been ok. The feeling sick was a new symptom for me that I've never had before.

So I reduce my dose to 5mg on Friday and within 24 hours my bowel movements, whilst not loose and far more frequent. I had been going once a day for the past 7 weeks but now its 4 or 5. I also get intense pain when having a BM.

My appetite is vanishing too, and the amount of abdo pain I'm getting is unreal, and surprisingly with Crohn's I have never really suffered too much with pain.

Oh, and I'm feeling INCREDIBLY lazy again.

Hopefully my first infusion of Remicade does something for me tomorrow!

:depressed:

 

[countrycoffeehouse]

I had something similar when I was on Pred. When I weaned off of it the disease came back stronger and with a vengeance which is why I will avoid it at all costs in the future. Remicade worked great for me until I missed a dose. It took a couple of weeks to shut the flare down though on the first treatment. Good luck

 

[Shannon]

This has happened to me and I am on another round of Pred until the flare is really over, instead of just masked my meds. Boy it can be discouraging! Hang in there.

 

[Mountaingem]

:hang:Oh, yes, that's been me plenty of times, before Remicade and MTX. It's almost like it gets more aggressive the more pred you take, right?

Remi made a HUGE difference for me. I hope it's the same for you too Squad, get back to feeling good really soon! :dog:

BTW, what does your screen name mean? Just curious, we used to have a thread where everyone explains their screen name.

 

[Squadinho]

Had my first infusion, went great, staff were really nice.

There were a couple of other people in the same room having their infusions so was nice to chat to other people face to face about Crohn's.

Got another now in two weeks, hopefully it will kick in soon!

My screen name is a long story. Basically I started out playing online games when I was 13, and I thought "Yeah, Death Squad is a good name considering I'm gonna go round shooting people!" Then I got to know a couple of people and they started calling me Squaddie. Then we started to turn our screen-names into football (soccer) player's names so, like Ronaldinho I went for Squadinho.

We had all sorts, Sevenchenko, Nasrici, the lot.

 

[TheWifeUC]

This happened to my husband on one of his tapers last year. According to one of my hub's docs, withdrawal symptoms of "normal" people coming off prednisone are pretty similar to the symptoms of IBD. (Just can't win!) So we slowed down the rate of the taper (added a week to each stepdown) and that seemed to do the trick. He was able to get off the pred and was fine for about 4 months (but that's a whole other story). Don't know if it's true or if slowing down was what did the trick or not, but it was worth a shot.

 

[MapleLeafGirl]

Been there - done that - 3 times now. Now on my 4th taper and waiting for surgery

 

[Misty-Eyed]

Yes... it took me 7 years to get off the Pred in the end. But that was a long time ago and I got there eventually!

Good luck with the Remicade

 

[lseibert]

Oh you could be me. I'm tapering right now, started at 60 and now down to 15. I feel better by the end of the week, but the beginning of the week is hell. I was hoping maybe by Christmas, my Dr. says, probably not, it's 7 weeks off, he says this is when it great hard to get all the way off.
Dear God, I hate this stuff!!!
:hug:

 

[Mejay07]

I really hope the Remi works for you, it has been great for me until recently since I have an abscess and didn't know.
With the pred, once I got down to 10mg a day, my symptoms came back almost full force, I had to go back up to 20mg a day to feel a little bit of relief. I eventually was able to taper off once I got the remicade going.

Good luck to you. It didn't take too long to kick in for me the first time around.