Any experiences about NG tubes?
- Thread starter nezsu
- Start date
Help Support Crohn's Disease Forum:
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- Apr 28, 2012
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Hi and welcome.
I so sorry to hear about your son. My girl is 4 1/2 now but has suffered since birth.
By the time of her dx she had stopped eating all together and the n-g tube was a God-send for us.
Study up on it. I watched video's about it. Grace had a home health care nurse come out and put hers in. It was VERY traumatic for all of us the first time but she was for the first time in a long time able to get all her nutrition (Splash).
More will be along to help.
Hugs, once you get the hang of this it will be easier. We're here anytime you have questions or just need someone to listen to you.
I so sorry to hear about your son. My girl is 4 1/2 now but has suffered since birth.
By the time of her dx she had stopped eating all together and the n-g tube was a God-send for us.
Study up on it. I watched video's about it. Grace had a home health care nurse come out and put hers in. It was VERY traumatic for all of us the first time but she was for the first time in a long time able to get all her nutrition (Splash).
More will be along to help.
Hugs, once you get the hang of this it will be easier. We're here anytime you have questions or just need someone to listen to you.
- Joined
- Oct 11, 2013
- Messages
- 33
there is nothing to worry really...
its a lot easier to have NG tube to feed kids than feeding them orally. you have him inserted with long life NG tube, my son was given a tube that can last 3 months but we changed after 6 weeks.
initially you need to feed at a slower rate than advised and once the body is used to it, you can follow the instructions given.
we fed our 9yo son 310 ml from 15 to 20 min in the beginning and cut down to 5 min at the end of 8 weeks.
if you feed them very fast they may throw up, hope this helps
let me know if you need further instructions, I have a copy of the instructions given by the day care, I can share it...
are we cursed to have our kids suffer with CD? why not us??
hope your son has a mild CD and will recover after 8 weeks of Neocate for ever
Madhav
its a lot easier to have NG tube to feed kids than feeding them orally. you have him inserted with long life NG tube, my son was given a tube that can last 3 months but we changed after 6 weeks.
initially you need to feed at a slower rate than advised and once the body is used to it, you can follow the instructions given.
we fed our 9yo son 310 ml from 15 to 20 min in the beginning and cut down to 5 min at the end of 8 weeks.
if you feed them very fast they may throw up, hope this helps
let me know if you need further instructions, I have a copy of the instructions given by the day care, I can share it...
are we cursed to have our kids suffer with CD? why not us??
hope your son has a mild CD and will recover after 8 weeks of Neocate for ever
Madhav
- Joined
- Apr 15, 2013
- Messages
- 272
Sorry about your son.
I'm 13 and earlier this year I had an NG tube for six weeks, and it did manage to get me in remission and I stayed well for months and months!
I found it hard at times and sometimes I did get annoyed that I would sit hooked up to a feed while everyone got to eat food, but I'm sure it will really be worth it for you!
I had a few complications with my tube but it was solved within the first week and the next week I was sent home with a pump that we were taught to use. Ive actually heard that it is easier in younger kids and I dunno why? I know kids your sons age who have all there feeds by gravity and happily get along with there tubes yet my stomach couldn't cope with that and so we had to slowly control in the food with a pump, but I know loads of youngsters who got on so well with it so I think I was generally a difficult patient lol.
I wish you all the best and feel free to PM me if you want to talk I'm happy to answer any questions! Hope the tube works for him I'm sure it will! Xx
I'm 13 and earlier this year I had an NG tube for six weeks, and it did manage to get me in remission and I stayed well for months and months!
I found it hard at times and sometimes I did get annoyed that I would sit hooked up to a feed while everyone got to eat food, but I'm sure it will really be worth it for you!
I had a few complications with my tube but it was solved within the first week and the next week I was sent home with a pump that we were taught to use. Ive actually heard that it is easier in younger kids and I dunno why? I know kids your sons age who have all there feeds by gravity and happily get along with there tubes yet my stomach couldn't cope with that and so we had to slowly control in the food with a pump, but I know loads of youngsters who got on so well with it so I think I was generally a difficult patient lol.
I wish you all the best and feel free to PM me if you want to talk I'm happy to answer any questions! Hope the tube works for him I'm sure it will! Xx
Welcome to the forum, nezsu! I'm sorry to hear of your little one's dx. My 8 yr old son was dx'd in March and we were given the choice of EEN with NG tube (GI's top choice) or Prednisone. Because of his age and the emotional stuff that could go along with the NG tube, we opted for prednisone. Had my son been a toddler though (or older and able to handle it emotionally), I feel quite confident I'd have gone the NG tube route. I hope it goes well for you. I know others here have had great success with that treatment.
