Any one experienced melkersson rosanthal caused by crohns

[jazmac]

I have had severe crohn's at varying degrees for 10ys. The past year I have had swelling and redness between my top lip and nose. (among many other crohns symptoms). I am very self conscience but it doesn't hurt, just looks bad. Some days make up can't hide it. Dermotologist said its "melkersson rosanthal syndrome", suggested short term topical steroid, but gastroenterologist told me not to use it as the skin there is already thin. HAS ANYONE EXPERIENCED THIS AND FOUND SOMETHING / ANYTHING THAT HAS REDUCED THE REDNESS. I sometime wish i was a boy then i could grow a moustache to cover it. I have been on all meds and currently on humira which they thought would reduce redness but it doesn't seem to be doing much for my crohns. I've been on it a month. Any suggestions much appreciated

 

[Lisa]

Are you sure about the diagnosis?.....not sure how old you are but this says it shows up early usually...although the last line IS interesting!

Melkersson-Rosenthal syndrome is a rare neurological disorder characterized by recurring facial paralysis, swelling of the face and lips (usually the upper lip), and the development of folds and furrows in the tongue. Onset is in childhood or early adolescence. After recurrent attacks (ranging from days to years in between), swelling may persist and increase, eventually becoming permanent. The lip may become hard, cracked, and fissured with a reddish-brown discoloration. The cause of Melkersson-Rosenthal syndrome is unknown, but there may be a genetic predisposition. It can be symptomatic of Crohn's disease or sarcoidosis.