Bad night

[mnijihc]

I am having a bad night My insides are sore. All of them. I am nauseous and bloated and when I poke at my abdomen it hurts right from the front to my back. I am also having what very well may be kidney pain. No fevers yet but I would not be surprised if I end up spiking one. My stomach is super swollen and if I didn't know better I would think I am pregnant. I am also exhausted.

I think my plan is to try to get a bottle of water in me and see how that goes. It was VERY hot here today and I may be a bit dehydrated. I am going to try to wait this out for the night and if it is bad tomorrow I will try to see my doctor. I meet my GI for the first time Friday too...I am so close! I don't want to go to be forced back to an ER now!

 

[EthanPSU]

:/ I hope you feel better by tommorrow. I know not being able because of being sick sucks.

I think the heat does play a role in crohns, maybe put a fan on you along with the water and just chill

 

[mnijihc]

I have AC at home so I am in a nice and comfortable temp. It helps! It was 37C here today, which is like 99F. I hate summer...super humid too.

 

[Txarmywife]

I hear u!! I had an awful night last night/today. The heat doesn't help either!! I'm so drained I can barely walk to the kitchen to get a drink or take my meds. I find soaking in a bath helps me or putting a heating pad on my tummy. I've had my fair share of kidney stones/kidney pain as well and it helps for both. I see my GI early next week and like you I'm just trying to hang on without going to the ER. But if you're throwing up and have D, ESP when it's hot I'd err on the side of caution. Dehydration can happen quickly in the summer for "normal" people so we r at an increased risk. Maybe call the GI and see what they suggest or if they can see you sooner. Try to take it easy and go Ito the ER if it gets bad. Hopefully we both have better nights ahead of us soon!!

 

[mnijihc]

I'm in the ER. Couldn't make it

 

[mnijihc]

I was sent home again. I got some IV fluids and some zofran and then double my normal percocet dose. I see the GI tomorrow and I am going to try to see my family doctor today and get some kind of anything from her to make it so I can at least sleep.

 

[EthanPSU]

:/ I hope the GI has helpful info for you tomorro and gets you back to being healthy

 

[mnijihc]

I saw my doctor tonight, my GP not my GI. She upped my pain med dosing, put me back on clear fluids, and upped my prednisone again to 32.5mg. She is looking to get home care to come in to do IV fluids and maybe nutrition instead of having me admitted. She apparently spoke with the GI today who said I should be admitted for IV nutrition but because of a whole host of other health stuff it is actually better for me to be at home and so we are trying to figure out ways to make sure I can stay here. A UTI was ruled out but that means that my relatively intense abdominal and back pain is all the crohn's.

I guess tomorrow with the GI will dictate where we go from here. I am really upset and angry and having a hard time dealing with it right now. I am lucky to have a very empathetic doctor who gets how much this sucks and is supportive of my emotional responses but tonight I am feeling kind of done with this stuff. I am ready for it to end and go away now but I know it won't. Dealing with that part is hard.