So i had my third Remi treatment yesterday i got there at noon and two other people had already started theirs. I turned down the pre meds again because i was fine two weeks ago at my last treatment. She started my drip and not even two minutes into it i felt like i was struggling to breath the woman across from me (whom i had been chatting with) stopped talking and looked worried she said "honey are you okay, your so red" i realized then that it wasnt all in my head so i yelled for the nurse to stop my drip. As soon as she looked at me she jumped up to pull it out and ran out of the room screaming for a Dr. When someone in the medical field gets paniked it only makes you worse so i started balling (at this point im not able to breath AT ALL) then i started to dry heave im positive i would have vomited exorcist style if my throat was not swollen shut. So the man sitting next to me hands me a trashcan to throw up into and when i went to grab it i realized that my hands were contorted like drawn in and i couldnt move them (still no breathing) then the dr runs in with a shot and starts yelling out for this and that and then it hits me i may die right here right now and i cant even call my son (kamdyn-3) to say goodbye because i cant breath. The nurse put an oxgen thing on my finger and told the Dr i was sitting at 70 and thats when i started gasping for air still crying like a big baby. After a couple more shots (steroids and nausea meds) & an oxygen mask i reached 98 and felt a little better very weak and sleepy but alive.
My dr. has decided to pull me from all biologics and the new plan is to do a small bowl series to see how far the scar tissue is, seeing as how im only 21 he would like to remove the area (if its not to long) and start fresh with pills when the crohns comes back. If its too much he would like to stick with the Pred. and add in a couple pills that might make my tummy feel better but will hurt all my other organs.
At this point im at a loss just when i think that im on the road to a better life style that i can stop missing work and start playing with my child something like this happens and im back to missing work and constantly in and out of the hospital/ Dr.'s office. However im so greatful to be alive no matter how complicated this gets i would rather be here with my son than dead.
My dr. has decided to pull me from all biologics and the new plan is to do a small bowl series to see how far the scar tissue is, seeing as how im only 21 he would like to remove the area (if its not to long) and start fresh with pills when the crohns comes back. If its too much he would like to stick with the Pred. and add in a couple pills that might make my tummy feel better but will hurt all my other organs.
At this point im at a loss just when i think that im on the road to a better life style that i can stop missing work and start playing with my child something like this happens and im back to missing work and constantly in and out of the hospital/ Dr.'s office. However im so greatful to be alive no matter how complicated this gets i would rather be here with my son than dead.
