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Crohn's Disease Forum

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Joined
Feb 26, 2025
Messages
2
Location
Macedon NY
Hello everyone thanks for having me. I have had diagnosed Crohn's for 15 years symptoms stretch back at least the 15 years prior. I didn't get treatment until fistulas showed up humira cimzia then no treatment for a few years then remicade stelara and now skyrizi I'm doing ok but not great have had multiple fistula surgeries I'm avoiding a stoma at all costs but it looks like my only option
 
I developed fistulas early on, and after close to 20 years I developed a life threatening infection that required surgery that left me with a temporary stoma that became permanent. A stoma is a trade off of life quality for a longer life. A stoma is a bit of a challenge but a far better relief than the painful fistulas that made me fearful of bowel movements.
20 years later I had another surgery that left me with a proctectomy where they removed my rectum since it was becoming precancerous. Life goes on, I am now in my senior years, and those sugerys were worth it in the long run.
 

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