"clean" issues?

[Sparky]

Bear with me a little please, as I'm not entirely sure how to word this.

One of my major issues with CD has always been the 'unclean' thing that I have in my head. I know it's not rational, I know I am as clean as I can possibly be, but I realised this week I have a real problem with feeling as if I'm somehow 'dirty' when my CD is active (a lot of the time - never really in remission, but not seriously flaring iyswim?)

I don't discuss it if I can possibly help it - I'm naturally quite private, but I am really uncomfortable talking about it AT ALL other than with my husband and my best friend.

How do I get past this? It's not like I'm newly diagnosed, I've lived with this for more than 5 years. I've just realised this week that I completely bury my head where CD is concerned - I blame my fatigue, pain, everything on RA. I live with my CD symptoms (frequency, urgency, pain), but have managed to convince myself that they're no big deal really .

What triggered this is the skin lesions I have - splatter poo anyone? I was so disgusted with my own body I can't even describe it.

Really not sure what to do - I feel like I want to boil-wash myself. I know I need to get a grip - really don't know how.

Thanks for reading x

 

[jed]

no t really sure how to answer this one for you sparky i think i've just accepted it as it is. but i'm just a dirty boy anyway

i do know what you mean about feeling dirty, just a crap to disease to have.

the lesions are on you butt i take it?

 

[catfud]

I think I understand where you are coming from sparky. I've totally accepted the fact that CD is messy and poo myself and this side of things just doesn't bother me. Though during a flare up I 'feel' dirty and that people shouldn't have to 'suffer' putting up with me/my condition. It is difficult to explain because I know in my head it's not the case. Sometimes i feel like im plagued and people might catch it. Even though that is totally not possible! Personally I have had a few people that played important roles in my life that have reacted badly to my condition. I'm guess im left affected physcologically by this.

I'm not sure if I'm rambling now, or if I'm making sense...

EDIT: Actually I think I may have mis read your post. Brain feels like its in a vice right now with meds. sorry.

 

[MINI Cooper]

Being female with CD, I completely understand the needing to feel clean thing.
I go mental if I can't have my shower for the day or if my toilet isn't sparkling
clean for my next 'visit'. Sometimes I even change my clothes 3 times in one
day just to feel better. I guess I've just learned to live with it and don't think
about it much anymore.

 

[Sparky]

Good to know it's not just me being stupid then, feel better knowing that other people have this irrational 'thing' about feeling clean.

Jed - lesions are on my bum, but extend a little further to most of my knicker area, which is not only sore but quite distressing. Antibiotics helped a lot thankfully, still working on not feeling like my DH would be mad to want to get any closer than arms length though.

I guess I'm surprised at how it's bothering me, as it's not like this is a new disease to me. Need to get my head around it a bit better, and stop playing ostrich I guess.

Thanks for not making me feel like a total muppet

 

[MINI Cooper]

ditto on the antibacterial wipes. I use those puppies like crazy! :ylol2:

 

[kello82]

have you showed your doc the leisons? crohns itself can cause sores to pop up, not necessarily being "dirty".

i have sores that they refer to as "leisons" in my mouth and also one on my butt that is similar to the mouth sores.

im not an expert on this but it seems that they could be just another inflammation from the disease.

and i'm with the other ladies-wipes and panty liners are the way to go. i use that "secret" pocket in my purse to carry these and an extra pair of undies always

 

[RHOV]

i also use wipes! baby wipes work pretty well, as do the "feminine wipes" that come with pads. i started buying a certain brand just for the wipes that come with them. easy and discreet, and it feels so good!