- Joined
- Aug 28, 2010
- Messages
- 5
Hello,
I am Cyndy, 53yo female living in beautiful Puget Sound, Washington State.
So in mid-April 2010 I had a flare up of what I assumed was a dormant pilonidal cyst, which is a cyst on the bottom of your tailbone. It never came to the surface and seemed to tunnel inside. Maybe I am wrong about that, maybe I mistook sensations of the pilonidal and it was Ulcerative Colitis all along.
In any event, I started getting weird sensations in the buttock area, like something taking up space, extreme pressure, like something big wants to pop, dull achy pain, about a 7 on the stress level, a couple steps down from crying out in pain. The pain is constant 24 hours a day.
It's warm back/down there. At one point I felt some "squishy" when I attempted to sit, that freaked me out so I took some Chlorine Dioxide to kill infection. No idea if that worked but the squishy did go away. Then I got C-Diff from taking Clindamycin for what the Dr and I thought was a Pilonidal Cyst, and I got referred to a Gastro Dr who did the MRI and diagnosed the Ulcerative Colitis...
When I try to sit, I feel what I want to call "lines" and "lumps" and it feels like it's pushing up and there is no room "up". I have to use a fluffy pillow and a "neck pillow" with the opening to the back to sit. I can't sit at all without those pillows, and I have a difficult time sitting with the pillows for longer than 10 minutes.
I have/had a desk job. I work at the computer all day, or did. I have applied for State Medical Assistance since I have no insurance.
I had never heard of Colitis making it difficult for someone to sit, this is incredible news to me. Certainly with a pilonidal cyst I can understand this, but is this common with Colitis in the Rectal area? I nearly called the Dr's office nurse a liar over this.
I joined this forum because I entered:
Colitis "can't sit"
...into Google and the 5th result was a thread that I can't link to because I have made less than 15 posts. The thread was at this forum and I was viewing it unregistered in the "Google Cache" view, an old Google Researcher trick...
Here is the post that came up in the search for
Colitis and "can't sit"
...with someone discussing having a form of Colitis and not being able to sit.
I am here to discover the answers to these questions:
-----Is this not being able to sit a symptom of Ulcerative Colitis?
-----If so, how common is it?
-----What can be done? -- I have already lost one job and you can't waltz into a job interview with 2 pillows for a job interview. Plus, who wants to hire someone in pain, I mean this is constant. It hurts all the time. My only relief is sleep, and it's hard to go to sleep.
On top of that, now my right hip has started hurting. so bad I can barely walk. I have had surgery on that hip and normally it does not hurt unless the temperature in close to freezing, but this is mid summer. There is no reason for it.
I'm going to poke around some more and see if I can find any cases similar to mine.
Thank you for reading my story.
I am Cyndy, 53yo female living in beautiful Puget Sound, Washington State.
So in mid-April 2010 I had a flare up of what I assumed was a dormant pilonidal cyst, which is a cyst on the bottom of your tailbone. It never came to the surface and seemed to tunnel inside. Maybe I am wrong about that, maybe I mistook sensations of the pilonidal and it was Ulcerative Colitis all along.
In any event, I started getting weird sensations in the buttock area, like something taking up space, extreme pressure, like something big wants to pop, dull achy pain, about a 7 on the stress level, a couple steps down from crying out in pain. The pain is constant 24 hours a day.
It's warm back/down there. At one point I felt some "squishy" when I attempted to sit, that freaked me out so I took some Chlorine Dioxide to kill infection. No idea if that worked but the squishy did go away. Then I got C-Diff from taking Clindamycin for what the Dr and I thought was a Pilonidal Cyst, and I got referred to a Gastro Dr who did the MRI and diagnosed the Ulcerative Colitis...
When I try to sit, I feel what I want to call "lines" and "lumps" and it feels like it's pushing up and there is no room "up". I have to use a fluffy pillow and a "neck pillow" with the opening to the back to sit. I can't sit at all without those pillows, and I have a difficult time sitting with the pillows for longer than 10 minutes.
I have/had a desk job. I work at the computer all day, or did. I have applied for State Medical Assistance since I have no insurance.
I had never heard of Colitis making it difficult for someone to sit, this is incredible news to me. Certainly with a pilonidal cyst I can understand this, but is this common with Colitis in the Rectal area? I nearly called the Dr's office nurse a liar over this.
I joined this forum because I entered:
Colitis "can't sit"
...into Google and the 5th result was a thread that I can't link to because I have made less than 15 posts. The thread was at this forum and I was viewing it unregistered in the "Google Cache" view, an old Google Researcher trick...
Here is the post that came up in the search for
Colitis and "can't sit"
...with someone discussing having a form of Colitis and not being able to sit.
I am here to discover the answers to these questions:
-----Is this not being able to sit a symptom of Ulcerative Colitis?
-----If so, how common is it?
-----What can be done? -- I have already lost one job and you can't waltz into a job interview with 2 pillows for a job interview. Plus, who wants to hire someone in pain, I mean this is constant. It hurts all the time. My only relief is sleep, and it's hard to go to sleep.
On top of that, now my right hip has started hurting. so bad I can barely walk. I have had surgery on that hip and normally it does not hurt unless the temperature in close to freezing, but this is mid summer. There is no reason for it.
I'm going to poke around some more and see if I can find any cases similar to mine.
Thank you for reading my story.
Last edited:
