Crohn's and my life!

[Kanonu03]

Hi there! I am a mother of three beautiful boys and a wife to a amazing soldier! Two years ago, I was diagnosed with Crohn's and didn't know the road I was about to take. I have suffered these past two years with medicine not being effective! I have recently had a ileocolectomy in Feb of this year but still my struggles follow me! My GI doctor, which is a military guy, doesn't understand what I am going through I don't think! He looks at me like I am talking a different language. My husband and family are very supportive but yet, they can not understand what I am going through. I have had alot to learn myself over the past two years about Crohn's Disease and I have never met anyone with it! For awhile I thought I was the only one in the world living like this (crazy I know). But I now know that I am not the only one going through this and to hear how other people get through it, would be good to me. Thank you and I look forward to hearing from other people and reading their stories in hope to help me in someway!

Shanan Schilling
Diagnosed Feb 2008
Currently taking Remicade since 2009

 

[brenda1]

Shanan, I to am married to an amazing soldier and am a mother of 2 awesome girls. I was just diagnosed in Sept 2009 with Chron's and my husband and children had to literally do everything for me and the household for about 6 months until I was able to manage every day tasks. As much as they have witnessed what I have gone through they can still never totally understand what it's like. This forum has been wonderful in helping me understand more about chron's and giving support. It does wonders knowing there are other out there that know exactly what you are going through. I'm glad you found us

 

[Dexky]

Hey Shanan, how old are your boys? Is your husband deployed or home now? I'm sure if those boys are small, you've got your hands full even w/o crohn's. Will your military insurance not let you see another off base GI? It doesn't sound like you are getting what you need from the one you have now. Good luck, hope to see you around.

 

[Crohn's 35]

:bigwave: Welcome to the forum Shanan. You have come to the right place for support, understanding and information from a bunch of great people here. We range from young and older lol, mothers and dads with kids of crohns, and husbands and wives supporting their spouses.

Some with no kids to one mom with 9 children :yfaint: lol.

Whether you have questions, a vent or a laugh we are here to help you with whatever you need!

Glad you are with us!

 

[Astra]

Hi shanan
and welcome

I was gonna suggest same as Mark, can't you see someone else off base?
glad you found us, lots of support here for you
lotsa luv
Joan xxx

 

[Kanonu03]

Thank you guys! I have three boys, 9, 7 and 6 yrs old. My husband is currently home but is deploying in December for 6 months. Unfortunately, he is gone more than he is home We are living in Alaska, where we have no family. It makes it even harder for me. I have some really great friends here, but like everyone else, doesn't fully understand what I have to go through. The first year of my diagnosis I was doing great..this past year, not so good. Are you guys successful with the medicine they give us for Crohn's. I spent the last year on steroids till I finally said I wasnt doing it anymore. It masked the problem, didn't fix it. I have been from the pills, to Humira to now Remicade and still have not seen the relief I was expecting. Had surgery in Feb and did great for a few months, but now the pain is back to everyday and SOO much worse than prior to surgery! I am trying to hold on to HOPE and FAITH but it's very hard!! I don't want to sound like a whimp because I'm one of those "everything happens for a reason" type of person, but to be honest..I am not seeing a light at the end of the tunnel. I am currently working with my insurance and my nurse case worker to see a different GI. There is currently one other person here at this base that has Crohn's so experienced my GI can not be! He thinks Tylenol is strong enough to take the pain away..thinks my nerves and stress level is irrelevant and thinks the Remicade is the overall cure. Basically, I feel he thinks it's all in my head. I keep journals on what I eat to see if some food is causing the BAD days, I exercise to try to stay healthy and everything in between LOL! How do you guys do it? I try to not feel sorry for myself but it's hard on sometimes! It's hard to stay positive when everyday seems like a bad dream I can't wake up from? Any suggestions for me would be great! I am glad I found this forum..today is just a bad day for me..tomorrow you might see me laughing about it LOL! Thank you guys for listening to me venting...maybe I needed alittle of that too

Shanan
Diagnosed in Feb 2009
Currently on Remicade since 2008
Ileocolectomy Feb. 2010