Crohns disease 20 years old

[ralph1994]

Hello. I am 20 years old. Sorry if my english is bad, i am a french canadian . Ive been diagnosed december 2014 for crohns disease. I was really sick and i spent 2 months in hospital in april/may 2015. I had abscesses and lot of inflammation in the ileon. They tried treating with medication and antibiotics. Nothing worked, so i had to have a resection on the may 8th. They removed all the inflammed part of my intestin and cleaned the abscesses. I stayed the week after the surgery at the hospital. Went home on the may 15th. Since then, im feeling SO good, no a single pain. I eat a lot, gained 40 pounds. Everything is going perfectly. I take No medication at all. But now, i had an appointment with my GI last week, she said i will need to start taking remicade , to prevent to disease from coming back. Im really anxious about this and i dont understand why i would need to take medication if im feeling so good.. Anyone experienced something similar and could help me? Thank you

 

[ronroush7]

I know I have to take medication even when in remission. Welcome to the group.

 

[fuzzy butterfly]

Hi i had a resection 20mths ago n had it reversed 9 mths ago . I feel well generaly but cant gain weight and im on fresubin food drinks aswell. I am on no meds for crohns either. Got gi appointment jan but i worry that not being on something may not help me long term !!. On other hand i dont want to take meds if i dont have to argh !!
I think some docs give meds when in remission some dont, but who knows which is actualy the best way !!
best wishes

 

[ronroush7]

Hi i had a resection 20mths ago n had it reversed 9 mths ago . I feel well generaly but cant gain weight and im on fresubin food drinks aswell. I am on no meds for crohns either. Got gi appointment jan but i worry that not being on something may not help me long term !!. On other hand i dont want to take meds if i dont have to argh !!
I think some docs give meds when in remission some dont, but who knows which is actualy the best way !!
best wishes

Wish I was off meds

 

[my little penguin]

Anti-tumor necrosis factor (TNF) therapy, such as infliximab, is the most effective treatment for the prevention of postoperative recurrence. It is recommended as first-line prophylactic therapy for patients who are at high risk for postoperative recurrence, those who have tried but in whom AZA/6-MP has failed, or those who are intolerant of AZA/6-MP.[4,10] Multiple small randomized controlled trials and prospective open-label trials have found that infliximab and adalimumab are superior to placebo, mesalamine, and azathioprine at preventing postoperative recurrence. A recent systematic review and network meta-analysis examining the comparative efficacy of these drugs in the prevention of postoperative recurrence concluded that anti-TNF therapy appears to be the most effective prophylactic strategy.[11]

Postoperative natural history studies have taught us that most—but not all—patients will develop recurrent disease. Thus, initiating anti-TNF therapy in all postoperative Crohn disease patients would certainly mean overtreating a subset. This is not a trivial concern: Anti-TNF therapy is costly and is associated with a moderate risk for infection. Biologic therapies are also prone to immunogenicity with the development of antidrug antibodies and subsequent loss of response, predisposing patients to potential serious allergic reactions and leaving them with fewer treatment options.

Because the patient in this case is at moderate but not high risk for postoperative recurrence and did not try AZA/6-MP for the treatment of his Crohn disease before surgery, it is recommended that the patient first try AZA/6-MP before considering anti-TNF therapy.

For patient follow-up, early colonoscopy at 6 months after surgery is recommended on the basis of the recently published POCER study.[12] The POCER study found that patients who underwent early colonoscopy followed by treatment escalation based on endoscopic findings had significantly less endoscopic disease recurrence at 18 months after surgery compared with patients who had forgone early colonoscopy and treatment modification.

From
http://www.medscape.com/viewarticle/854055?src=wnl_edit_tpal&uac=185734DZ



Prevention of Postoperative Recurrence of Crohn Disease
Arthur M. Barrie, MD, PhD|Disclosures
November 11, 2015


This is why your Gi wants remicade
DS has been on biologics for 3 years including remicade with very few sides effects
He started them at age 8 and is now almost 12

Good luck

 

[fuzzy butterfly]

Wish I was off meds

Oh i wish you were too hun. Im on a cocktail of painkillers mind for my joint pain. But i worry about them affecting my stomach !!!. Im on omeprazole for stomach acid too.

 

[ronroush7]

Oh i wish you were too hun. Im on a cocktail of painkillers mind for my joint pain. But i worry about them affecting my stomach !!!. Im on omeprazole for stomach acid too.

I have a chiropractor. He has treated me lately for lower back pain. I realized earlier that I haven't had any pain there lately.

 

[fuzzy butterfly]

Ah well that's good Ron, but don't speak to loudly incase it hears you

 

[ronroush7]