Hi, guys.
I feel I'm guilty as any Inflammatory Bowel Disease patient for often hiding away and not wanting to talk about my condition with others. Despite writing and publishing a chapbook of poetry on my experiences with Crohn's Disease, I don't feel like I've done enough. There is still no known cause or cure, and I firmly believe this stems from many of our unwillingness to be open and honest about IBD. As embarrassing as it is, us "stronger" ones need to step up and discuss our varying experiences with our illnesses for a better understanding.
Such is why, during my "better days" of living with an illness, I've devised a brief questionnaire relating to patients of Crohn's Disease, Ulcerative Colitis and other forms of IBD (Collagenous Colitis/Lymphocytic Colitis/ Ischaemic Colitis/Diversion Colitis/Behçet's Disease/Indeterminate Colitis). My aim is to forward this to as many people as I can and then publish their answers on my website/blog; if you're reading this now, however, you can save me a job by copying and pasting the questionnaire below, filling in your answers and then emailing it to me at the following address:
[email protected]
Cheers.
Stay strong,
Andy.
Name:
Age:
Current Location:
Number of Years Diagnosed with Crohn’s/Colitis:
Smoke: Yes/No
Current Medication:
What were your initial reactions after being diagnosed with IBD?
Tell us about your experiences with IBD thereafter in/out of hospital (max. three paragraphs)
On average, how many times do you go to the toilet to defecate a day?
Which foods/drinks, do you find, most commonly cause a “flare-up”?
Are you able to work? If so, please tell us how your condition affected your career?
Do your co-workers/family/partner/friends know about your condition? Do you feel comfortable talking about it?
What are your beliefs regarding the cause of your form of IBD (whether Crohn’s, Colitis or other)?
Do you have any wise words/helpful advice/secret remedies for fellow IBD sufferers?
I feel I'm guilty as any Inflammatory Bowel Disease patient for often hiding away and not wanting to talk about my condition with others. Despite writing and publishing a chapbook of poetry on my experiences with Crohn's Disease, I don't feel like I've done enough. There is still no known cause or cure, and I firmly believe this stems from many of our unwillingness to be open and honest about IBD. As embarrassing as it is, us "stronger" ones need to step up and discuss our varying experiences with our illnesses for a better understanding.
Such is why, during my "better days" of living with an illness, I've devised a brief questionnaire relating to patients of Crohn's Disease, Ulcerative Colitis and other forms of IBD (Collagenous Colitis/Lymphocytic Colitis/ Ischaemic Colitis/Diversion Colitis/Behçet's Disease/Indeterminate Colitis). My aim is to forward this to as many people as I can and then publish their answers on my website/blog; if you're reading this now, however, you can save me a job by copying and pasting the questionnaire below, filling in your answers and then emailing it to me at the following address:
[email protected]
Cheers.
Stay strong,
Andy.
Name:
Age:
Current Location:
Number of Years Diagnosed with Crohn’s/Colitis:
Smoke: Yes/No
Current Medication:
What were your initial reactions after being diagnosed with IBD?
Tell us about your experiences with IBD thereafter in/out of hospital (max. three paragraphs)
On average, how many times do you go to the toilet to defecate a day?
Which foods/drinks, do you find, most commonly cause a “flare-up”?
Are you able to work? If so, please tell us how your condition affected your career?
Do your co-workers/family/partner/friends know about your condition? Do you feel comfortable talking about it?
What are your beliefs regarding the cause of your form of IBD (whether Crohn’s, Colitis or other)?
Do you have any wise words/helpful advice/secret remedies for fellow IBD sufferers?
