Crohn's + Endometriosis, Adenomyosis, Interstitial Cystitis

[Leese]

Hello ladies, do any of you have Endometriosis or Adenomyosis or Interstitial Cystitis or Pudendal Neuralgia (or if you're really "lucky" like me - you have all of them!)?

Just wondering how common having Crohn's + Endometriosis is... :rosette1:

 

[Jennifer]

Not that I'm aware of so my guess would be no. I'll bump your thread and see if anyone else does though. Sorry about all the unlucky diagnosis.

 

[agirl65]

I was diagnosed with endometriosis about 6 months ago and I was diagnosed with Crohn's in June of this year. I've often wondered if they are related! I'm interested to hear from other ladies. I'm sorry you have all this trouble though!

 

[Astra]

http://www.crohnsforum.com/wiki/Endometriosis-can-mimic-Crohns

here you go, read this!
seems very popular this endo lark at the mo!
xx

 

[agirl65]

Very interesting! I just had an ultrasound and will be seeing my OBGYN next week, he wants to do an ablation and a tubal (I'm really not sure about this) so I will let him know about the Crohn's. Thanks for that link!

 

[Caeryn23]

I was diagnosed with Stage 3 Endometriosis. I had a total hysterectomy in March. I haven't been diagnosed with IBD yet; and still have GI issues.

 

[agirl65]

Oh wow, I'm sorry you went through that, it sure is painful. My mother has UC and had endometriosis. She had a full hysterectomy back when I was 3 or 4. I've always had GI issues of some sort, just in the last 4 yrs they've gotten really bad. About a year after my 2nd C-section is when I was diagnosed with endometriosis.

 

[prplkow]

I have CD (dx just two months ago). I had (hopefully will stay had) endometriosis and adenomyosis. (TAHBSO 2008) I always have the urge to pee with my bladder, but have never had anything tested for anything. With the CD I have LRQ pain, and I had it there with the endometriosis as well. Lately with my flare, I sometimes have pain during sex there, so I am worried the endo might be back or is it just the flare. Since I am so new to CD, I am making an appt with the gyn just to follow since I heard that there is always a possibility of it coming back. >sigh<

 

[Latte]

I have PCOS (polycystic ovaries) diagnosed in 2000
Endometriosis diagnosed in 2009 so far had 3 laparoscopies - 1 diagnostic, 1 removal 1 diagnostic to see if the endo had returned due to the increase in pain etc which I now know to be CD

now I have CD diagnosed two weeks ago

I am 38

on metformin for the PCOS
femodene bcp for the endo
entocort, calcium vit d and liquid iron for the CD

 

[M101]

I have endometriosis and was diagnosed with Endo and Crohns just a few months apart. Also very curious re any links, and also concerned I have been midiagnosed with Crohns! x