- Joined
- Mar 24, 2011
- Messages
- 10
I was lucky and had only one emergency surgery in 1989 and received 15 units in just 5 hours. The surgeons and doctors could not figure why I was still talking like crazy. I could have gone into a coma any time. My wife also started cheating on me at that time (around 1990 emergency doctors told me "sorry your wife is a tramp to get that STD she would have been sleeping around") and I was married for 14 years and just had 2 kids. My wife told me the doctors were full of it and I believed her and was deaf, dumb and blind. My ex wife moved out in 2005 and in with an ex marine 14 years younger than her. She was very abusive for 14 years of a 30-year marriage. She was cute and came across very honest but was not. She spent all my money and paid off all her cards just before she left and also left me with a house in foreclosure. I was having a Crohn's flair and she abused me as a slacker and not getting a 40-hour a week job. I wish I could of. But she lived with me and knew of my limitations and it was an excuse to leave a sick person for a healthy one. She was greedy and only thought of her self so if that happens to you it is not your fault. The other person has no compassion and just cares about what makes them happy. I wasn't a slacker I had made and lost 2 fortunes to Crohn's. At 59 I'm starting over again but I am alone and it is hard with no support. Some people think because a person has Crohn's they are inferior. I had employers tell me they didn't want sick people working for them. I consider my self lucky because of Crohn's I have had about 35 jobs and business (mostly done with mass prednasione) from manufacturing video products to inspecting 747's. I now have an appointment for a UW Crohn's specialist. My gastro guy of 25 years has maxed out my options for controlling my Crohn's because I have become intolerant or can't tolerate other meds and I have tried them all. I also grew intolerant to Remacade. Watch for symptoms like lockjaw a within a day of getting Remacade. For me it was a pre-curser to a major reaction where I couldn't move and just laying down felt like I was hit by a car. I may have also developed Fibermialiga and arthritis from it (used it from 2000 to 2007). Although it is going to effect everyone different. I would not ever wish Crohn's on anyone but some people who think it's an excuse, your not that ill, faker, sure your bleeding internally work that 40 hour week so I can spend the money. I wish they could spend a few months in our shoes but people like that couldn't take it. We work 3 times harder than a healthy person has to do the same work. Our guts hurt all the time. Our muscles, joints hurt and sometimes we feel very weak. Mornings are real bad sometimes and sometimes all day. It is the human pecking order that people dump on and leave spouses that are ill. I think these people are more selfish, primitive and may have the ability to care but not the ability to love. They are usually ignorant and not very smart people. They are usually hurtful people who might teach others or your children that you are not good enough to be there mother, father or their spouse. I have meant hundreds of people like that over 50 years of Crohn's and they aren’t worth being around so don't let them mess your mind up. My ex wife and my sister who is 10 years older are like that now. My ex wasn't for the first 12 years of our marriage but then just turned. And I was sick off and on then also. Seek out a good doctor specialist in Crohn's if you are diagnosed. If I had to do it over I would try to avoid the drugs that mess with your immune system in a big way because in the long term they can mess with other things. If a doctor gives you a medication and you have a reaction but the doctor doesn't believe that the drug can do that (remember they are educated on these meds by the pharmaceutical sales person) and says lets try it again, RUN! I have been there and that is never a good sign of competence. Good luck and I am going to be an old Crohn's test subject at the university now. I'm going to see if I can be tested with some natural type medications.:shifty-t:
