Hi there. I was diagnosed with Crohn's disease approximately 5 months ago after a colonoscopy. I knew something was seriously wrong when I landed in the hospital for a week. At first the doctors thought it was appendicitis...then after some tests and scans my GP said he "thought" it was Crohns, the surgeon stated he "knew" it was Crohns and my GI stated it wasn't Crohns. After the scope and a biopsy... it's Crohns.
I spent 3 days in ICU on heavy pain meds (I ended up going through withdrawl...horrible). Then I went into the regular ward for the last 4 days. I don't want to be back there again.
My husband was supportive during my hospital stay. I returned home and was to be on "rest" for 3 months. This was very hard, as I am a VERY active person.
Needless to say I am sure, the adjustment was hard, not only for me, but for my husband. We are still having issues with it.
I was on steroids for the first 4 months. Then came off them. Within 3 weeks, I was starting to have symptoms similar to those I had prior to going into the hospital. I was put back onto a different steroid - a huge dose. I reacted well in terms of my bowels semi-functioning again, but I had almost every negative side affect. I was eventually taken off of these by my GI and put on Azathioprine (50mg x3/day) and Entocort (3mg x3/day). So far so good although my energy levels and mood hasn't been the same since before the hospital stay.
I suppose I have come to this forum to read other IBD patient stories and to hopefully find some support. I seem to be lacking it in my personal life and it is becoming emotionally painful.
Thank you.
Lana
I spent 3 days in ICU on heavy pain meds (I ended up going through withdrawl...horrible). Then I went into the regular ward for the last 4 days. I don't want to be back there again.
My husband was supportive during my hospital stay. I returned home and was to be on "rest" for 3 months. This was very hard, as I am a VERY active person.
Needless to say I am sure, the adjustment was hard, not only for me, but for my husband. We are still having issues with it.
I was on steroids for the first 4 months. Then came off them. Within 3 weeks, I was starting to have symptoms similar to those I had prior to going into the hospital. I was put back onto a different steroid - a huge dose. I reacted well in terms of my bowels semi-functioning again, but I had almost every negative side affect. I was eventually taken off of these by my GI and put on Azathioprine (50mg x3/day) and Entocort (3mg x3/day). So far so good although my energy levels and mood hasn't been the same since before the hospital stay.
I suppose I have come to this forum to read other IBD patient stories and to hopefully find some support. I seem to be lacking it in my personal life and it is becoming emotionally painful.
Thank you.
Lana
