Crohns

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Joined
May 19, 2013
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Hey i was diagnosed with crohns in september 2009, I had been having severe stomach pain during/after eating for about 5 years but just got used to it and didnt think anything of it.
I then went to the doctors due to feeling tired (thought anaemia as has previously had it) had blood tests and was told there was inflammation present, then was asked if i had any problems with my tummy. Explained to the doctor about the pain and it all started from there.
Was referred to gastro at the hospital, was told i looked healthy then sent off for cameras (both ends) didnt show a lot, then sent for barium and xrays to follow white blood cells. At that point the person doing the barium said he thought it was crohns. i left feeling scared and confused as that was the first mention of anything and i had no idea what it was.
From then on i was put on entocort, and after being diagnosed, pain seemed to worsen.
I then was put on high doses of prednisolone and azathioprine nothing seemed to help and was on high does for around 7 months.
As they were running out of ideas they decided the best option was surgery.
I had surgery just over 2 years ago and "touch wood" havent had any pain since.
I had camera again last summer and was told the were signs of ulcers and early crohns but luckily still nothing.
End of last year diarrhoea seemed to come back bad but after scans showed it was Bile salt absorption and taking questran when needed to help (tastes horrible)
Still on azathioprine as recommended by consultant.
 
Hello Harry,

Welcome to the forum :) Thank you for sharing your story here with us, I have found this forum to be very very supportive and it has been a God-send to me and I hope you will find that too.

I'm still quite new to Crohns and am waiting on barium meal results (mmmm barium yum lol) I'm on pentasa and omeprazole right now but they aren't doing enough, I was like you in that I think my symptoms got worse after I was diagnosed, but from reading other threads I think it might be related to the colonoscopy effects as others have mentioned having a flare after these tests, I noticed too after the barium meal my symptoms have worsened again :(. I think Crohns takes a lot of getting used to, there is so much to consider and in my opinion, everyday is controlled by it, I'm hoping as I get used to it all that I will begin to control the Crohns :).

I hope you will keep in touch with us and let us know how you are getting on with your treatment etc. Until then, take care and best wishes.
 

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