Crunch time

[jordan29]

crunch time

Had Jordan to see his gi today for a check up to see how he is doing and his gi said these next two weeks will be is crunch time as that will be the end of his pred it wasnt his usual gi this one said he is the old school gi and said if jordan starts having a flare he would prefer to keep him on 10mg of pred long term he has worried me because i thought pred wasnt to be taken long term i asked him if that can cause and long term damage to jordan and he said no not on 10mg a day its strange how older gi have a diffrent outlook to the younger gi :frown:

 

[muppet]

10mg long term is something I'd be nervous about, too. I'd press the issue. That said, if your son (I'm assuming?) is flaring at the end of a Prednisone course, more Prednisone might be the thing to do.

In my experience, it's better to raise the dose and then taper down to nothing again, but that's only based on me and my daughter.

 

[jordan29]

i was thinking that to muppet he is doing really well at the min i think i will ring his ibd nurse tomorrow and talk to her i could of picked it up wrong but he doesnt seem to agree with the azathioprine and agree more to the pred he has really baffled me now

 

[littlemissh]

I wouldn't be overly keen on maintenance pred unless no other alternative. How old is Jordan as it can also affect growth.

 

[jordan29]

He is only 15 out of the 4 gi at this hospital the one we seen today was the only one Jordan said he didn't like he expects Jordan to answer all the questions he asks like what strength Pred he is on and what strength imuran he is on Jordan hasn't a clue I do all his meds like us mams and dads do then the gi gets really abrupt with him when he doesn't no sorry for going on

 

[muppet]

In that GI's defense, it IS pretty important that Jordan know what meds he's on and the doses. At his age he should be fluent for safety's sake. Not only so that he can tell medical personnel in an emergency situation exactly what he's on, but so that he can double check you and dad and make sure you haven't miscounted his pills one day.

My daughter has been able to recite all of her meds and supplements (over 12 per day) since she was 9. It's something I strongly recommend.

Not that the GI necessarily wasn't a jerk...

 

[jordan29]

You are right muppet I think it's just since he got dx in June I have been this over powering protective mam his dad says I should be encouraging him to start doing his meds himself and take a step back and let Jordan start doing it himself

 

[DustyKat]

I agree that Jordan should take responsibility for his meds but it is still early days yet Mum and I can understand you still hovering very close by. My son (17 at the time) was diagnosed last December. Initially I doubt he knew exactly what he was on but he soon learnt. Don't necessarily underestimate him, perhaps he doesn't have a clue but he may surprise you too. Also the approach of the GI may not have helped the situation.

I know with my son, he is naturally introverted, plus he wasn't on top things and was hating the whole Crohns diagnosis, so whenever he was approached by the doctors, he has had 3 hospital admissions, he would often say he didn't know something when he well knew the answer.

I agree with muppet about the Pred. It really isn't a drug to be on long term at any age if it can be avoided and certainly not a teenager. A bump up and another taper, ?lengthier more gentle, may be called for though.

Dusty. xxx

 

[jordan29]

Thanks dusty I had a talk to Jordan yesterday and he said he doesn't mind doing his own meds I said I would keep an eye on him for a few days but he got up this morning and told me what they all were and told me his pred were missing so I had to explain that he only has 2 every other day then 1 every other day next week so I think he has been taking notice but just sitting back letting me do all the running around

 

[DustyKat]

Awwww, good for him.

I have Matt pack his into a dosette each week. That way he knows what he is on, it is easy to see if a dose has been taken or missed and gives you plenty of time to get scripts refilled.

Dusty. :heart:

 

[Carrie]

I have Matt pack his into a dosette each week. That way he knows what he is on, it is easy to see if a dose has been taken or missed and gives you plenty of time to get scripts refilled.

Dusty. :heart:

Even as an adult I do the same, and I don't take that many tabs. If your son is taking alternating doses of pred, this would make it easier to keep track of this. When I was a kid, my parents noted my pred dosages and tapering schedule on a calendar which was also useful.