CT scan shows ileitis, waiting to see GI doc...

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Jun 9, 2012
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Just joined, hoping to get some help from others as my anxiety is through the roof at this point.

I am 37 years old, mom of two little girls, long history of anxiety. It seems like over the last month I have had all of these medical issues come up at once. I worry that I may not be taken seriously when I report symptoms as it may seem like really everything is just anxiety. First I had sudden horrible upper back pain, which I have been able to address with physical therapy. I have also had unexplained pain in my right leg, and I had some significant pain on my right side. I went to my doctor for the pains and she was worried enough about my appendix she referred me to the hospital for a CT scan. I also had a scan of my leg done which showed nothing, but I am pretty sure she was just humoring me there.

The abdominal CT can showed that I had inflammation of my colon, specifically ileitis. My doctors office prescribed Flagyl, a bland diet, and referred me to a GI doctor. I will not see the GI doctor until July 16th. When I reported continued pain, they prescribed Bentyl. I took it once, and it was awful- it made me feel like I took a lot of Benedryl, and there would be no way to take care of my girls while taking that. When I called back and reported that, they prescribed Cipro. I think the idea is that it would increase the chance of getting rid of presumed infection and would improve my pain faster?

So I posting here because I am pretty much a mess. I am not sure what to do at this point. I am still experiencing discomfort, primarily in my right side. This is the fourth day I have taken the Flagyl. I am really unclear about what I should and should not be eating- I get rice, bananas, etc., but with more than a month ahead of me before i see a GI doctor, I am trying to figure out what I will eat. I am unclear about pain relievers- it seems like I could take Advil, and my doctors office says I can, but I am reading online that that may not be a good idea. I am also wondering about supplements, exercise, all kinds of things- basically I am just wondering if there is anything I can do to make this better. I really dislike and don't trust my primary physician, and had meant to find a new doctor before something happened, but here I am.

I am totally hyperaware of every symptom I am having- last night I woke up feeling hot, and immediately thought night sweats = cancer. I have noticed I have been losing a lot of hair. Until all of this total health craziness, we had been contemplating a third and final baby. Now I am terrified I won't see my two girls grow up. Hopefully not rational, but that is just where my mind is. I do have a anxiety meds, and I am taking them, but the anxiety is still a huge issue. So, I am posting here hoping anyone can reassure me, share their experiences, give me some idea of what to expect, ??? I appreciate anyone who has read my rambling story.
 
I feel for you. It's hard waiting when you know something is not right. I was diagnosed with crohn's ileitis after a small bowel obstruction. Before that I had the night sweats and I swear I was losing a lot of hair. I still freak out a little over any pain because I immediatly think it's the start of something, but that's getting better.
When I was first diagnosed I was put on a low fiber/low residue diet for several months to help my system heal. I googled it and found some good guides to what I could and couldn't eat.
Hope you feel better soon and find some answers. You could always try calling the GI office and see if they can sneak you in sooner. Tell them how you're feeling.
 
Thank you marjaw! I will look into the low fiber/low residue diet for now. I am on a cancellation list for the GI doctor, and hopefully they will call me in sooner. I am still having fairly significant pain in my right side, and my doctor's office directed me to call back on Monday if I am still having pain. I really wish that I had taken the initiative to find a new doctor that I like before something happened!
 

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